F.E.A.S.T's Around The Dinner Table forum

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greekdude
Hello
our son called and said that EEG (ElectroEncephaloGraph) with "eyes open" is due to take place tonight. Any experience with this? I didn't find anything but research papers.
Thanks
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Enn
That is usually used to assess for seizure activity. Are you able to ask the team why they are doing that?
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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Enn
I found this ie different brain wave activity in those with AN and EEG activity.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3261648/
Never heard of this before.
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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greekdude
Also I found this one : https://www.academia.edu/22084943/EEG_in_adolescent_anorexia_nervosa_impact_of_refeeding_and_weight_gain , says that the patterns prior/after refeeding tend to change. I will try to ask tomorrow.
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greekdude
Today I called the doctor, he said that all the kids in the dept have a EEG for free, and ours was subject to further investigation cause he was peeing in his sleep. I told him our son never did that at home, maybe this is his way to show some violence or resistance (or the ED more accurately). He said they didn't find anything worrying. Lets see.
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Enn
Interesting. Hope it all goes well.
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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greekdude
Thank you @scaredmom .
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ValentinaGermania
Does he drink a lot?
Here we had the problem that my d needed to get up in the nights 2 or 3 times to go to the toilet in the dark days because her bladder was shrunk. Maybe he just sleeps to good? Do they give him meds to sleep?
Keep feeding. There is light at the end of the tunnel.
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greekdude
Hello @tina72 . I think everything is under control by the hospital, his drinking included. Prior to that, in the dark days, he used to drink a lot of water but never to the point of not controlling peeing.
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atdt31_US
For what it is worth (and that might be nothing at all), bedwetting in a child previously well trained, is considered "pathognomonic" for Pans/Pandas ... that is, P/P goes to the top of the list of things to consider, especially in the setting with other P/P symptoms (like eating restriction, OCD, handwriting deterioration, etc).  Dr. Swedo is one of the main P/P doctors and researchers.  In this clip, she talks about it and highlights the importance of considering P/P when bedwetting is present.  Hit the link and go forward to about the 51:35 mark -- she talks about urinary symptoms.  What she describes is very exaggerated urinary symptoms, but reading around the Pans/Pandas boards for more hours than I can count, I can say that many parents report less exaggerated urinary symptoms in their P/P kids.  Hopefully the link works, if not, Youtube Saskatoon Pandas 2019 and go to video #1 Dr. Swedo Historical perspective.   Also, she talks about if you suspect P/P to "swab that throat" - she is talking to a room full of P/P parents and providers who know that is shorthand for look everywhere for strep (could be throat but a negative throat culture does not mean no strep ... can be in rash form almost like a mild diaper rash in perianal area; even around toenails if looks like an ingrown nail; can hide in sinuses (hard to test for)).

Mom of either pre-diagnosis or non-ed underweight 12 yoa (as of March 2018) kid here to learn how to achieve weight gain.  BMI steadily in the mid 12's for nearly her entire life.  Born 2006. UPDATE:  April 2018 diagnosed ARFID, based solely on weight being less than 75% of Ideal Body Weight.  Mildly picky, but mostly the problem is a volume/early satiety issue, along with abdominal discomfort and chronic constipation, all present since birth.  UPDATE:  July 2019 diagnosed with PANS. Dr. said likely started first PANS episode at less than 1 or 2 years of age.  On long-term daily prophylactic antibiotics. BMI now about 16 after period of intense refeeding prior to PANS dx,  followed by stagnation as we sort out what is next. FWIW ED-D is a fraternal twin and we have no other kids.
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greekdude
@atdt31_US thanks, cannot claim I understood everything you wrote, but our son has hypothyroidism which as my sister said is a classical case of self-immune condition.
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ValentinaGermania
greekdude wrote:
Hello @tina72 . I think everything is under control by the hospital, his drinking included. Prior to that, in the dark days, he used to drink a lot of water but never to the point of not controlling peeing.
 

If he has access to a bathroom without supervision he also might do water loading to fake more weight gain. This also impacts the volume of the bladder. Please ask if he has access to water without control...
Keep feeding. There is light at the end of the tunnel.
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greekdude
Hello @tina72 I'll ask that.
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