Louie
Mentor
Registered: March 31, 2009
Posts: 1,157
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| | Nov 02, 2009 at 07:24 AM | Reply with quote | #1 |
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| Well well well, For all those carers out there starting refeeding...let me tell you this. My D was down 21kgs or 46lbs from where she is today....back in January this year. She is WR now, has been for a couple of months, and has been progressing very well, particularly in the last month. Today she told me something that should give you all strength in the trenches..... "Mum....there are things I want to say to you but I haven't yet (since feeling better)" "The food you have given me all this year has been very yummy and I am glad you made it all tasty food" "The first day we were refeeding, you gave me Greek yogurt and although I told you it was disgusting and I said all those horrible things, that was the ED not me. I remember thinking that this was the most beautiful yogurt I had ever had...I hadn't eaten anything sweet for a long time before that." What I want carers to understand...if they don't already...... DO NOT BE AFRAID OF WHAT E.D. IS AFRAID OF! REFEED......refeed...refeed....don't listen to ED...don't listen to whinging, shouting, screaming, etc etc etc |
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Whistler
Mentor
Registered: Sept 04, 2007
Posts: 228
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Mamame
Moderator
Registered: Oct 30, 2008
Posts: 3,168
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| | Nov 02, 2009 at 10:33 AM | Reply with quote | #3 |
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Beautiful,
I remember you spoon fed for a long time and I don't think I will soon forget the sandwich rundown you had at a park. One amazing mum and one beautiful daughter.
ED is a lying B..B..B...
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pennysgirlUSA
Mentor
Registered: Nov 06, 2008
Posts: 1,783
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| | Nov 02, 2009 at 10:40 AM | Reply with quote | #4 |
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| Well put, Louie! "DO NOT BE AFRAID OF WHAT E.D. IS AFRAID OF!" |
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DebB
Registered: Feb 25, 2009
Posts: 76
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| | Nov 02, 2009 at 11:13 AM | Reply with quote | #5 |
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| Thanks for sharing. Your post brought tears to my eyes. But gives us encouragement. |
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ihavehopeUS
Mentor
Registered: Feb 05, 2009
Posts: 560
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| | Nov 02, 2009 at 11:14 AM | Reply with quote | #6 |
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Oh Louie - thank you so much for sharing this with us. You have done one incredible job and I am so proud of your d for being able to be honest with you.
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Zeri
Mentor
Registered: Feb 19, 2008
Posts: 1,480
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| | Nov 02, 2009 at 01:20 PM | Reply with quote | #7 |
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Praise God!
And I bet those simple words made the hell you went thru to get the nutrition in and keep it in all worthwhile.
Refeed, refeed, refeed, indeed! Excellent, Louie! You are reaping the blessing.
Hallelujah!
Zeri
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girl14AusNSW
Mentor
Registered: Aug 23, 2009
Posts: 1,708
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Louie
Mentor
Registered: March 31, 2009
Posts: 1,157
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| | Nov 02, 2009 at 04:16 PM | Reply with quote | #9 |
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| Thank you for your kind words everyone.....yes...this ED world is so filled with emotions...and tears of joy, frustration, anger, and pure love for a child in need. |
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lydia
Moderator
Registered: Aug 04, 2007
Posts: 2,769
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| | Nov 02, 2009 at 04:39 PM | Reply with quote | #10 |
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Louie,
So often ADTD, we try to help parents understand the importance of separating their child from the disease. Sharing this conversation with your d is such a blessing...it really helps parents see why this matters.
Our "real" children are hidden by the gruesome symptoms of their suffering. It's later, after the battle in the swamp of this sickness, that many parents finally hear from their own children how desperate they were for someone to love them enough not to believe the voice of ed.
Thank you, thank you...your posts are a constant source of encouragement!
Sending a back rub.
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mygirl
Mentor
Registered: March 06, 2009
Posts: 599
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| | Nov 02, 2009 at 05:47 PM | Reply with quote | #11 |
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Ahhhhh, such beauty in her words. Healing really!
Thanks for sharing!
Give that fabulous girl of yours a big kiss and a hug and an ice cream from me.
I am so proud of her...and you!
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BridgetAUS
Moderator
Registered: July 31, 2007
Posts: 1,067
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| | Nov 02, 2009 at 05:59 PM | Reply with quote | #12 |
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Wow Louie - I don't think anyone could have put it better -"Don't be afraid of what ED is afraid of".
Making me misty too!!
Hugs to your family.
Bridget
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AnnieK
Mentor
Registered: Feb 28, 2009
Posts: 848
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| | Nov 02, 2009 at 06:17 PM | Reply with quote | #13 |
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| Deep thanks to you for sharing your D's remembrance. The very strong picture you have painted of a person only being able to partake of the delicious food that is necessary for life because of the determined action of her loved ones, will stay with me forever. You have pounded another nail into ED's coffin. |
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Louie
Mentor
Registered: March 31, 2009
Posts: 1,157
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| | Nov 02, 2009 at 07:02 PM | Reply with quote | #14 |
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| AnnieK...I like that....all year I have been looking for a magic wand, and what I actually needed was a hammer to put another nail in ED's coffin....lol...I have a good mental picture of that one. I need a tool belt too.....you can never have too many accessories. Knife, fork, spoon, refrigerator, stove, groceries, hammer, nails.....the list goes on. I am not going to put the fridge in the tool belt....it will be too heavy....ha ha. |
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LauraCollinsUS
Moderator
Registered: July 31, 2007
Posts: 4,036
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| | Nov 03, 2009 at 05:43 PM | Reply with quote | #15 |
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I have a dream:
That we could hand this post to every mother and father the day they begin to face ED. Imagine the difference in how a family might be able to respond!
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Stubbornmum
Mentor
Registered: June 06, 2008
Posts: 624
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| | Nov 03, 2009 at 11:22 PM | Reply with quote | #16 |
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Louie, WOW. Thank you to you and your d, in sharing these personal thoughts.
I love that you are an accessories girl, so am I!!!!
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Waterhous
Moderator
Registered: Nov 28, 2007
Posts: 1,105
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| | Nov 04, 2009 at 01:54 AM | Reply with quote | #17 |
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Louie,
This kind of post is the most valuable IMO, as it shows the light onto the path for those just beginning this journey.
Thank you for the illumination.
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gracemaguire
Registered: Nov 16, 2009
Posts: 88
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| | Nov 16, 2009 at 09:40 AM | Reply with quote | #18 |
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For a mum just starting out on refeeding in earnest today.....
thank you.
Grace
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Louie
Mentor
Registered: March 31, 2009
Posts: 1,157
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| | Nov 16, 2009 at 03:46 PM | Reply with quote | #19 |
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| Hi Gracie, Welcome to our virtual table, it is amazing to experience the strength and support that is here. There are many wise, lovable and sometimes feisty characters to share with. A wealth of experience. Welcome lovely Mum. |
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