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sunnyakela

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Reply with quote  #1 
My 15-year-old daughter with RAN also has severe depression, anxiety, and OCD. She is currently in the adolescent unit being treated for depression. We have had a good experience with CFD for residential and Veritas for PHP, but the depression has never been controlled by meds/therapy. As the depression has worsened, her ED has re-emerged.

Has anyone found a residential center with a strong ability to treat depression and SI? She started TMS before this trip to the hospital, so continuing that would be a bonus, but not a necessity. She is not a fan of DBT and will probably not benefit from that kind of program again. We are a year into treatment and she is down to 85% WR, down from 100% earlier this year.

Any thoughts are much appreciated. We were doing so well, and then suddenly we weren't.

Thanks!
Torie

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Reply with quote  #2 
Hi sunnyakela - I'm sorry I can't answer your question, but I wanted to mention that my d also had severe depression at age 15.  This was the time of year she would spiral down down down and then gradually things would get better after Christmas.  I wonder if your d might be on a cyclical path as well?  I never found anything that really helped, but I did follow the advice I read to keep telling her it WOULD get better.  No matter how hard she insisted it never would, no matter how much doubt I had myself, I just kept waving that banner, and I think it gave her a glimmer of hope as she floundered adrift in a sea of roiling emotions.

Best of luck and please keep us posted. xx

-Torie

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"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
sunnyakela

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Reply with quote  #3 
Torie,

Thanks so much for your response. This is the second year in a row that she is in the hospital at the start of school, so that might be part of it. We thought she was doing better at the beginning of the summer, but she said that the depression was still pretty strong. We were in the process of switching meds when she had increased suicidal ideation. We discontinued and tried another with the same result. We went back to the first med, but she didn't bounce back like we thought she would. We hoped that the structure of summer school would help. She felt compelled to finish the class, but felt that she couldn't hang on one more day after that.

So here we are in the psychiatric unit where she has more control of her meals and can lose weight. We are waiting to hear the result of her psych evaluation, but we are pretty sure that she will need to go to a residential facility to deal with her dropping weight and ED thoughts. I'd like to find one that would keep her safe and really address the depression. I feel like we are going to keep going around in circles until we can deal with both equally. 

I'll let you know if we come up with anything.




 


flower_medicine

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Reply with quote  #4 
I can't give any advice, only comfort knowing you are not alone.Our D had RAN, with OCD ,severe depression ,severe anxiety and sensory issues..IE  noises ,smells,textures .I'm seeing a common thread among a lot of ED sufferers with these diagnosis. It seems they do come hand in hand.Our issue is now D is in acute treatment for ED she is not receiving help for the others. She has a release date for Monday and I am terrified for her. I'm not seeing any improvement with her thoughts or coping skills. The only leverage that has helped her to eat is to get out of ed unit and to have visits.That may be our only leverage for when she comes home.There is such a gap in care here in NC and we are unable to go directly into residential care.Doors may be open in Oct.I'm saying all this just to say you are not alone in your struggles and neither are our children. Much love and strength to you and yours.
sunnyakela

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Reply with quote  #5 
Thanks, FM. I hope your daughter's transition to home is going well so far. We had the same problem with local treatment options. Veritas is closest, but our insurance wouldn't pay for residential. Their pre-screening process is also longer than most and we needed a bed faster than that. CFD in Fairfax was out of network, but they were able to get our insurance to do a single case agreement. It might be worth talking to them. The small, home-like atmosphere worked well for our daughter. Our insurance did cover PHP at Veritas, so that might also be an option for you. If you are coming from outside the area, there is a Ronald McDonald house where the parents stay. Veritas great family education and support.

Mine has been switched to the EDU from the adolescent unit because of her weight loss. The mealtime structure is definitely better for her. She has been on both units before, but I had forgotten how different the two are in atmosphere.

We are being pointed toward McLean if she needs residential after this and her SI and depression have not decreased. If she is doing better on that front, we may see if we can get CFD covered again.  

Now to figure out the whole school situation once again...


sunnyakela

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Reply with quote  #6 
FM,

I just read your welcome thread and realize that my suggestions on what might work with insurance would be different for you. I hope you can get her into Tapestry and figure out the logistics of getting her there and back. Would Renfrew PHP in Charlotte be an option?

We know that we are lucky in a small way that our daughter is the youngest. The older two can take care of themselves while we are completely wrapped up in finding care for our daughter. It is such a long battle. 






EC_Mom

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Reply with quote  #7 
Renfrew is NOT recommended by anyone I know on this board. Their promotional materials say things like:

"Anorexia, bulimia, and binge eating disorder are often signs of deeper emotional issues or conflicts, and can have a devastating impact on women and their families. Renfrew helps patients restore physical and emotional health by understanding and dealing with the underlying causes of their disorders."

This means that Renfrew subscribes to non-evidence-based treatment and to a model that the patient has to resolve conflicts to get better. NOPE. The patient has to eat to get better, and it's a brain disorder. That is the 'underlying cause', the brain disorder, not an emotional issue or conflict. 
sunnyakela

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Posts: 17
Reply with quote  #8 
Ugh, that is good to know. We considered the FL facility for residential, but it never made the top of our list. Glad that we didn't pursue it. Of course, we did end up at Timberline Knolls, which was an ordeal that we will never forget. 


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