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pacaso

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Reply with quote  #1 
Hello,
My daughter was been diagnosed with AN three years ago, however, in my city, there is little information and qualified therapist, my daughter has been visiting a psychologist and a nutritionist but it seems that they make terrible mistakes during these years and it looks I have gathered more information from books than what they have about ED. After reaching a lot and time has passed I found on our capital city a group of therapist who know about ED and especially they know some about FBT, which I have read it has better results with teenagers. My daughter is 15 years old and we have just started with this team, however, we taking advantage of summer vacation for her treatment which we about 3 to 4 hours a week, I would like your advise if this time will help and then can it be brought to the therapist once a month or this will be not enough, can it be done by Skype, or you think it will be better to move to the this city until she gets cured.
Please let us know your advice.   Sorry for my english and the grammar errors.


 
pdxmama

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Reply with quote  #2 
I am in no position to offer advice about how to best support your daughter, but I can relay a bit of our experience. My d, also 15, was officially diagnosed last August with AN. We have learned a lot and are still in the midst of trying to figure out what will help her be successful. I have found that therapists and nutritionists really need solid training in eating disorders because it is such a tricky illness. I am also finding that my daughter is not able to fight her AN without a lot of support. She is struggling with weekly appointments with her therapist and dietitian. I am hoping that we will get in a better space and be able to get back on track, but it is still a lot of work. I think she could do the work via skype, but having only monthly appointments would be too hard for my daughter, I think. She did spend five weeks in residential care and then a month in partial care before starting with the present plan. AND she has only met with her present team for about a month, so it's early.

Sending positive energy your way[smile]


tina72

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Reply with quote  #3 
Hi pacaso,
I´m sorry that you have to join us here but I´m also glad that you found us because you will get a lot of help here. I had the same experience that I learned more from books and here than any therapist or doctor around us so far which is terrible but a lot of parents make this experience. And as you have to be the expert for your daughters health in the next months and even years its the best thing not only to rely on the doctors and the team but to ask yourself what your but says. You will find solutions that will work and as you are on your own most of the time it is important to be able to make decisions on your own.
My englisch is terrible too, don´t be afraid, we all understand you and if not somebody will ask. From which country are you from?
At the beginning I think it will be better to see the team face to face. Than later skype is a often used alternativ. How far is the capital from your home? We are driving an hour one way to our fbt trainer nearly each week. How often you have to see them depends on how deep your daughter is stuck in the ED. Can you give us some more details about that?
To move to the capital may be an advantage but will possibly change your life totally (school, friends etc.). Maybe that could make things even worse. Do you have relatives or friends around your home at the moment? You will need some help at the beginning.
Tina72
Foodsupport_AUS

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Reply with quote  #4 
Welcome to the forum. Please don't worry about your English. 

Sorry that you have been struggling so much over the last three years to get treatment for your D and her eating disorder. 
Taking time to get things kick started with FBT sounds like a great plan. This is a treatment that requires wholehearted dedication, especially at the beginning where the parents have the job of getting re-feeding initiated and moving in the right direction. Where you do that is to me less important, though in the end recovery needs to continue at home. 

Recovery from an eating disorder takes a long time, not just months but more commonly years. The risk of relapse remains down the track. Many find though that they can see improvement with dedicated treatment over shorter periods. 

Please let us know how we can help. 



__________________
D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
iHateED

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Reply with quote  #5 
Hello and welcome to the group, though so sorry that you need to be here.  I hope you can spend some time reading all around this website for some ideas that could apply to your situation.   My best advice is to get your D's weight up, as quickly as possible, by whatever means you can, whether that means doing it from home, or moving closer to treatment.  Every person's story is a little different so it's hard to say exactly what will work for your family.   If you tell us more about your D and what you are currently doing to get her to eat, and what kinds of food she will eat, maybe we can brainstorm some ideas for you on how to get the most calories into her meals.   Hang in there. 
Mamaroo

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Posts: 157
Reply with quote  #6 
Hi, glad you found us and FBT. I highly recommend Eva Musby's book: Anorexia and other Eating Disorders: how to help your child eat well and be well

It gives detail advice on refeerding at home and includes chapters on self care.

Good luck and sending lots of hugs!

__________________
D became obsessed with exercise at age 9. Started eating 'healthy' at age 9.5. Restricting couple of months later. IP for 2 weeks at age 10. Slowly refed for a year and WR at age 11 in March 2017. Challenging fear foods and behaviours now.
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