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AUSSIEedfamily

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Reply with quote  #1 
I am now in a fortunate position of having a daughter who is living a life without ED being the constant driver. To get the basics of our story read the attached PDF that Michael P Levine helped me to develop into a 15 minute presentation for the ANZAED confernce in Fremantle in 2014.

I read with very strong interest the posts of those with off spring experiencing long duration of illness. We too experienced a long duration of illness especially the first six years then a huge relapse hit. Luckily for us I found a mother who had experienced significantly worse than us that was played out for many to see on Australian Televison. Fortunately this mother now enjoys a life beyond the eating disorder which consumed their family's life for many years and enjoys having her daughter's children, her grandchildren to be in her life. I am for ever greatful that this mother was able to spend time with our family educating us in her home then travelling across Australia from the east coast to us on the west coast (4.5 hours flying time each way) to our home to visit us and educate us and our daughter.

Looking back on those times with this mother and comparing how she helped us to the work of USCD & the Centre for Balanced Living (CBL) I see many parallels and similarities with what happens at CBL. The shortest session we had with this mother was 5 hours. When we visited her in Melbourne we did 7 days with her over a 9 day period with the shortest time again 5 hours with some as long as 7 hours. When she travel across Australia to our home in Perth the shortest time with us was 5 hours with one special & crucial day being nearly 12 hours.

These times were not therapy times they were education times. This mother taught our daughter about what was impacting on her and what would help to stop it while at the same time teaching us the same thing. Over some nearly 18 months this mother travelled across Australia to visit us 9 times (about 9 hours flying time for the round trip) and provided an education and experience we could not have obtained via the standard one hour therapy sessions. A couple of times that was a round trip on the same day with about 7 hours with us making it a 20/21 hour day from door to door for her.

We were fortunate that this mother was not huge on expensive travel costs.

So my reason for this post is that our story to recovery of our daughter required a heap of time and intensive and long duration education for our daughter, us as a family and as each individual. If you can find this type of intensive long duration education for yourself & your loved one go for it with every resource you can muster it saved our daughter and ourselves.

Our special educator has now moved on from eating disorder education to live a life with her family especially her recovered daughter without eating disorders any where near them.



 
Attached Files
pdf Don-ANZAED-Father & Professor Presentation 23 August 2014.pdf (272.76 KB, 55 views)


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toothfairy

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Reply with quote  #2 
Don, that is just an amazing story !!
The presentation is fantastic too, Thanks for this lovely post.

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Son,DX with AN, (purging type) age 13 in October 2015 ,  (4 months immediate inpatient) , Then FBT at home since.and making progress every day. He is now in good recovery, and Living life to the full like a normal teen. We are not completely out of the woods yet, but we can see the light at the end of the tunnel, thanks to ATDT. Hoping to get him into full recovery and remission one day at a time.
AUSSIEedfamily

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Reply with quote  #3 
Dear toothfairy,

Glad you like it. I know for us the A typical 1 hour psychology sessions were not enough as just as  the good bits started to happen time was up and wait for another week until the next appointment. The long sessions with Jan allowed all of us and particularly our daughter to cover a heap of learning and come away feeling tired but having taken steps forward instead of getting only part of the stuff done and being left only partially through starting to take a step.

What I saw and experienced in Columbus Ohio at CBL on the 4th day of their 5 day program back in August last year reminded me of our times with Jan.

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toothfairy

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Reply with quote  #4 
I would love to see this type of help more widely available for carers Aussie!
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Son,DX with AN, (purging type) age 13 in October 2015 ,  (4 months immediate inpatient) , Then FBT at home since.and making progress every day. He is now in good recovery, and Living life to the full like a normal teen. We are not completely out of the woods yet, but we can see the light at the end of the tunnel, thanks to ATDT. Hoping to get him into full recovery and remission one day at a time.
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