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hopeforfather

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Reply with quote  #1 
Living in Basel, Switzerland and looking for FBT support.  Any resources in area (would consider Zurich and Bern too).
Kali

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Reply with quote  #2 
Dear HopeforFather,

I am sorry you have had to join us here but this is a great place to learn more about eating disorders and to get support from other families.

There was a Swiss family on the board who had their daughter successfully treated using FBT.

http://www.aroundthedinnertable.org/post/so-many-progresses-after-changing-treatment-8562180?pid=1296236746#gsc.tab=0

They posted under the name tdm13. If you click on their name in the post it will bring you to their profile and there is an option to email them directly if you would like. Perhaps they can point you in the direction of resources in Switzerland.

Also, we have a learning center with information about eating disorders, if you would like to take a look.

http://www.feast-ed.org/?page=LearningCenter

Best wishes,

Kali

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evamusby_UK

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Reply with quote  #3 
Hello hopeforfather,
I know a couple of parents who have worked hard at getting their treatment in Switzerland improved, and am emailing them to check out this post.

What I am pretty sure of is that there is only one place where FBT (or something similar) is being offered, and that's in Lausanne, CHUV, with Dr Ambresin.
Looks like a 2-hr drive each way for you [frown]

Consider also that some FBT therapists in various countries are willing to treat by Skype. I've listed them here.
From what I have learned of the Swiss system, these options might be preferable to the traditional treatment (hospital isolation, parentectomy) which you might otherwise get. On the other hand maybe now that Lausanne is improving, other places are doing so too.
Wishing you good things. Tell us how you're getting on!
Eva



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Eva Musby, mother, author, produces lots of resources for parents at http://anorexiafamily.com and on YouTube https://www.youtube.com/user/EvaMusby/playlists
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hopeforfather

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All:

We just got into an intensive 5 day program @UCSD for FBT.  Starting on Monday.  Hopefully, that gets us started and then we can figure out what we do when we return home to CH.  Thanks for any and all connections!

Great to know you are all out there as we start this journey.  It can be very daunting.
toothfairy

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Reply with quote  #5 
Hopefromfather,
Hi there from Dublin.
Well done on moving so fast & getting the place at UCSD.
I considered that programm too, it was my plan B.
The very best of luck to you all, please drop
By sometime & let us know how you got on.
Best Wishes
TF

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Son,DX with AN, (purging type) in 2015 ,had 4 months immediate inpatient,then FBT at home since. He is now in strong recovery, (Phase 3 ) and Living life to the full, like a "normal"[biggrin] teen. This is with thanks to ATDT. Hoping to get him into full recovery and remission one day at a time. Getting him to a much higher weight, and with a much higher calorie plan than his clinicians gave him as a target, was instrumental to getting him to the strong recovery that he is in now. Food is the medicine.
sk8r31

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Reply with quote  #6 
Well done on getting into the UCSD 5 Day program.  It was a game-changer for our family, and for many others as well.

Though we are 6 years out from having finished the program, I can honestly say that we never looked back after that time.  Our d is in strong recovery and enjoying a full and satisfying life.

Wishing you all the best.  It is an intensive week but will give you the skills and tools to be successful at refeeding and supporting your child at home.

Sending warm support,
sk8r31

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It is good to not only hope to be successful, but to expect it and accept it--Maya Angelou
evamusby_UK

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Reply with quote  #7 
Wonderful! I've only ever read glowing accounts of UCSD's 5-day program.


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Eva Musby, mother, author, produces lots of resources for parents at http://anorexiafamily.com and on YouTube https://www.youtube.com/user/EvaMusby/playlists
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hopeforfather

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All:

Thanks for the encouragement.  

2 Days in to the 5 day program and we are impressed so far.  Great support and we are learning a lot.  Hard on all of us.  So hard to accept this monster that is in our home and attacking out d.  We just keep riding waves of hope, fear, depression, empowerment, and overwhelm.  

deenl

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Reply with quote  #9 
Hi hopeforfather,

I had that feeling of disbelief very strongly the other day. It just felt so unbelievable that everything aligned and my incredible kid got this horrific illness that has thrown the whole family on it's head.

But he is making great progress and we are getting so close to remission that I can really feel and almost see it. You have a wonderful start with this course and it gets easier as you go along.

Keep up the good work.

Warm wishes
D

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2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, tons of variety in food, stepping back into social life. Sept 2017, back to school full time for the first time in 2 years. Happy and relaxed, just usual non ED hassles. 

  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal. (but don't give up on the plan too soon, maybe it just needs a tweak or a bit more time and determination [wink] )
  • We cannot control the wind but we can direct the sail.
evamusby_UK

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Reply with quote  #10 
I'm glad to hear your news. 
I've just heard from yet another Swiss family where the only option on offer was several weeks of total isolation from parents. This is very recent, not 150 years ago [mad]
I'm so glad you could make the journey to UCSD.


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Eva Musby, mother, author, produces lots of resources for parents at http://anorexiafamily.com and on YouTube https://www.youtube.com/user/EvaMusby/playlists
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hopeforfather

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Reply with quote  #11 
Eva:

I listened to your YouTube about treatment in CH.  Scary with this latest post too.  I can't believe it is still being prescribed.  
hopeforfather

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Reply with quote  #12 
All:.

Just finished the UCSD 5 Day Intensive Family Therapy program.  Participated with 4 other families.  It was a powerful experience.  I realize now what a long journey is ahead for all of us.  However, we all learned a ton about the ED and our daughter's experience.  D was open to being supported.  

We have a clear approach going forward.  

We are now returning home and nervous about care in CH.  However, we will continue to do FBT with a UCSD staff person who was leading the program over Skype which should work.  We are still looking for local expertise in Basel or surrounds if anyone gets any ideas.  


Foodsupport_AUS

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Reply with quote  #13 
Great to hear that it all went well, and that you have a clear plan. Finding support can be troublesome in some places, sorry no suggestions from here, but I would suggest interviewing and assessing their understanding of FBT and ED's beforehand. 
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D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
evamusby_UK

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Reply with quote  #14 
Quote:
D was open to being supported.  

We have a clear approach going forward.  

Wonderful!
And I'm really glad you're continuing to get support from UCSD by Skype.

If you ever do find good treatment near Basel, do let us know. 


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Eva Musby, mother, author, produces lots of resources for parents at http://anorexiafamily.com and on YouTube https://www.youtube.com/user/EvaMusby/playlists
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toothfairy

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Reply with quote  #15 
I am so pleased for you all,
Best wishes, keep asking questions here...

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Son,DX with AN, (purging type) in 2015 ,had 4 months immediate inpatient,then FBT at home since. He is now in strong recovery, (Phase 3 ) and Living life to the full, like a "normal"[biggrin] teen. This is with thanks to ATDT. Hoping to get him into full recovery and remission one day at a time. Getting him to a much higher weight, and with a much higher calorie plan than his clinicians gave him as a target, was instrumental to getting him to the strong recovery that he is in now. Food is the medicine.
hopeforfather

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Reply with quote  #16 
All:

We've been struggling with re-entry back to CH from US.  School started and it's been a bit off and on.  The good news is that she is eating and compliant with our meal plans and clear plate approach!!!  So, she is in the target range.  

The bad news is that she is very depressed and anxious.  She is basically not taking with her CBT therapist.  We are still having Skype calls with UCSD to keep us moving.  She is on meds but they don't seem to be doing anything.  

We had an incident where a routine visit to check on her heart became a consultation with the head of the ED clinic @Basel.  She was very nice but there doesn't seem to be an extensive outpatient approach at least not in English.  

Our D still has severe body image issues.  We are hiding mirrors and she is actually resisting any walking because of the way it feels.  She spends a lot of time at home hiding herself in blankets.  Any ideas on body image treatment, please let us know.

Having read some more posts tonight.  I'm thinking we should also count our blessings.  However, it doesn't feel that way from hour to hour sometimes.
toothfairy

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Reply with quote  #17 
Hi there,
Great that you are making progress.
My S had terrible body image issues until we pushed him well past "WR" ( set far too Low by his dietitian)..
When I fired her & pushed up the weight futher , the behaviours literally melted away.

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Son,DX with AN, (purging type) in 2015 ,had 4 months immediate inpatient,then FBT at home since. He is now in strong recovery, (Phase 3 ) and Living life to the full, like a "normal"[biggrin] teen. This is with thanks to ATDT. Hoping to get him into full recovery and remission one day at a time. Getting him to a much higher weight, and with a much higher calorie plan than his clinicians gave him as a target, was instrumental to getting him to the strong recovery that he is in now. Food is the medicine.
toothfairy

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Reply with quote  #18 
Have you seen this


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Son,DX with AN, (purging type) in 2015 ,had 4 months immediate inpatient,then FBT at home since. He is now in strong recovery, (Phase 3 ) and Living life to the full, like a "normal"[biggrin] teen. This is with thanks to ATDT. Hoping to get him into full recovery and remission one day at a time. Getting him to a much higher weight, and with a much higher calorie plan than his clinicians gave him as a target, was instrumental to getting him to the strong recovery that he is in now. Food is the medicine.
Torie

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Reply with quote  #19 
Like ToothFairy's son, my d got MUCH more comfortable with her body when she gained more weight (and kept it on for a while).

This vile illness is so weird.  

Keep up the good work!  xx

-Torie

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"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
Foodsupport_AUS

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Reply with quote  #20 
It is a slow process. You are only a few months in, though I know it feels like forever. It is common for anxiety and mood issues to worsen before they get better, and for body image issues to be more prominent with weight gain. Especially since initially weight is gained as fat mass. It does take time for that redistribution to happen. At the moment lots of love and support and keep feeding is the way forward. It may be a few months before she will be able to work with a therapist.
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D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
toothfairy

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Reply with quote  #21 
Hi
I just bumped up a thread for you on stages & timelines.
https://www.aroundthedinnertable.org/post/stages-and-timelines-and-how-they-set-us-all-up-to-fail-7917698#gsc.tab=0

__________________
Son,DX with AN, (purging type) in 2015 ,had 4 months immediate inpatient,then FBT at home since. He is now in strong recovery, (Phase 3 ) and Living life to the full, like a "normal"[biggrin] teen. This is with thanks to ATDT. Hoping to get him into full recovery and remission one day at a time. Getting him to a much higher weight, and with a much higher calorie plan than his clinicians gave him as a target, was instrumental to getting him to the strong recovery that he is in now. Food is the medicine.
evamusby_UK

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Reply with quote  #22 
Dear hopeforfather, 
I'm glad your feeding work is steady and successful.
It may be a question of time - time to do the healing, time to make peace with a new way of living.
What does your Skype person at UCSD recommend, I wonder?

Also, if it's any reassurance, I am not surprised by a 13-year old not engaging in individual CBT therapy. Do you think it's helpful? Or is it adding to her misery? Some people on this forum have reported CBT therapists engaging very well with this age group and even younger. But my impression is that the general rule is, teenagers don't open up to strangers. It's my experience with my D and I may be wrong in my generalisation.

Which brings me to this - reminding you that as parents you are precious to her, you matter to her, and you are the ones she can most open up to, feel loved by, feel accepted and just-about understood by. So do keep valuing what you do.
Love
Eva

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Eva Musby, mother, author, produces lots of resources for parents at http://anorexiafamily.com and on YouTube https://www.youtube.com/user/EvaMusby/playlists
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