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Determinedfamily

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Reply with quote  #1 
I just don't know where to post this. We lost our beautiful and amazing girl last Monday, Oct 21st. She died in her sleep. Thank God I was here with her. 
We thought she was closer to recovery than she had ever been. God answers prayers-just not always the way you might want Him to. Her struggles are over.
She had a strong team here in Houston-but DEFINITELY NOT the local OP-ED center-they are beyond awful.
Our last 6 months with her were a gift from God. After attending the ED conference in Dallas   we then understood EVERYTHING she had been going through. This healed our family and we got our child back. She once again became her younger sister's best friend. What a gift from God. Thank you so much for your work educating people on the complexity of ED.
I was here refeeding her for almost 6 months. Her employer held her job for 9 months, and she was back to work part-time, and was happy and positive. So close, yet not enough.
Hug your children close. We are devastated as we try to empty her apartment and come to some sense of closure. Houston is a city that puts it's arms around you, we are so blessed.
We now know the path we must follow. We will be advocating for ED education in Fort Worth. 
Bless all of you-this blog is a gift. Every piece of information found here can be used. 


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determined family
Rosered

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Reply with quote  #2 
I'm so very very sorry for your loss.  Words fail me.
Vamum

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Reply with quote  #3 
I am so sorry for your loss.
skechers

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Reply with quote  #4 
She will be a gift to the angels now and free from all sorrows. So sorry for your loss.
sk8r31

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Reply with quote  #5 
So very sorry for your loss.  Sending warm thoughts to you.

sk8r31

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It is good to not only hope to be successful, but to expect it and accept it--Maya Angelou
IrishUp

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Reply with quote  #6 
Determinedfamily; words are just poor vehicles for a loss like yours. Whatever of comfort there is to be had from an internet stranger's deepest empathy and shared outrage, I hope you can get it from here. May all possible comfort come to you and everyone who loved your dear D.


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IrishUp
momof4_US

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Reply with quote  #7 
So sad for your family but appreciate you sharing. 
semayawibeth

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Reply with quote  #8 
This is beyond heartbreaking. My heart and prayers are with you as you grieve your loss. There is one more bright and sparkling star in the sky!
lisaNJ_US

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Reply with quote  #9 
I am so sorry for your loss.
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Lisa NJ Mom to daughter dx AN (Nov. 2013) at age 10. WR April 2014. ~There is light at the end of the tunnel.~
Charbonie

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Reply with quote  #10 
So deeply sorry that you have had to endure such pain and loss. May she rest in peace.
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Best wishes,
Charbonie
------------------
18 yr old d Dx Mar 25/14. WR June 2014. FBT/EFFT, Individual Therapy. In Phase III, eating intuitively, letting her plan ahead on her own re her nutritional needs for the day and how they fit into her schedule. Teaching her how to cook more for herself. Still watchful. Thankful every single day.

Psycho_Mom

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Reply with quote  #11 
I'm so sorry. Thank you very much for sharing this.
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D diagnosed with EDNOS May 2013 at age 15, refed at home Aug 2013, since then symptoms gradually lessened and we retaught her how to feed and care for herself, including individual therapy, family skills DBT class, SSRI medication and relapse-prevention strategies. Anxiety was pre-existing and I believe she was sporadically restricting since about age 9. She now eats and behaves like any normal older teen, and is enjoying school, friends, sports, music and thinking about the future.
melstevUK

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Reply with quote  #12 
Determinedfamily,

So desparately sorry for the loss of your beautiful girl.  It is one death too many from this horrendous illness.  I am so glad that you had six wonderful months with her before you lost her and that your real daughter came back to you before she died.  There are no words to express the grief you must be feeling.

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Believe you can and you're halfway there.
Theodore Roosevelt.
Torie

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Reply with quote  #13 
So sorry.  So very, very sorry for your loss.
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"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
Amoma

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Reply with quote  #14 
please accept heartfelt condolence one mom to another. May you feel comfort from the support of other caregivers on here....
mnmomUSA

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Reply with quote  #15 
I am so sorry.  Your pain must be so deep.  May your memories comfort you in the days ahead.  God Bless


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D, age 17, first diagnosed March 20, 2013, RAN, at age 13 Hospitalized 3 weeks for medical stability. FBT at home since.  UCSD Multi-family Intensive June 2015. We've arrived on the other side.  :-)
joysomeday

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Reply with quote  #16 
So sorry for your loss.  This illness is just devastating, I am you were with her and your family had a reprieve and quality time in the past six months.  My heart goes out to you and your family.
PuddleduckNZ

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Reply with quote  #17 
Tears for you, and lots of heartfelt thoughts coming your way at this horrible time, from us here in NZ. Xx
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Son 9yrs when he became unwell 2013, ED slide from April 2014, dx at 10yrs July 2014, 2 hospitalisations - dx so many times Behavioural Anorexia, EDNOS, ARFID. FBT from August 2014. Anxiety, Emetophobia. 12.5yrs old now! In recovery, gets better every day with constant vigilance, life returns.
ahb

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Reply with quote  #18 
you are brave and compassionate in your sharing of your daughter's story. as the mom of 2 girls it was lovely to read About their relationship coming full circle. may you find peace in your love for one another.xoannie
YogurtParfait_US

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Reply with quote  #19 
Dear DeterminedFamily,

I'm so sorry I couldn't attend the Dallas conference and meet you there. I am so very grateful that what you learned there allowed you and your daughter, and your daughter and her sister, to connect and enjoy one another. 

I'm so sorry that your daughter's illness was so severe that she died, and that she suffered for so long, and that your family suffered so much. I am grateful that you had some good time together.

I will be praying for you and your family as you grieve. I look forward to your voice as an advocate when you are ready. Families and patients need our help. Your story matters. Your Sara's life matters. I'm so sorry that life was cut so short.

Sending warm support,
YP

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"Hope is a wonderful thing ... but hope by itself is not enough. Hope is the reason to take action, to make a plan and then to change the plan when it isn’t working - over and over and over again if necessary." Hannah Joseph (Let's Feast Friday Reflection, "Just Keep Going," Friday, March 3rd, 2015)
Danne0507

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Reply with quote  #20 
I shed tears with you at the tragic loss of your beautiful daughter whose recovery you worked so tirelessly to enable and which allowed her to  experience the most beautiful gift of all; the love between sisters. My own 23 year old daughter has struggled with this hideous illness for 9 years and is on her way tonight by medevac flight to Denver ERC inpatient. May the prayers and thoughts of other mothers who understand bring you some small measure of comfort.
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Danne0507
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Reply with quote  #21 
I am so very sorry. I am praying for you and your family. 
Boo94

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Reply with quote  #22 
So sorry for your loss and may she rest in peace. Cherish those last six months especially, they sound wonderful.
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Mother of 11 yr old girl diagnosed with RAN Feb 2014, WR April 14. Now 13 and in recovery/remission
SeminarLady

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Reply with quote  #23 
I am so very sorry for your loss.

May your precious child rest in peace.

Hugs!

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Cathy V.
Southern California
mamabear

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Reply with quote  #24 
No words...I cannot imagine your loss...I am so sorry.
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Persistent, consistent vigilance!
MarcellaUK

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Reply with quote  #25 
So very very sorry. May she rest in peace
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Fiona Marcella UK
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