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Penny31

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Reply with quote  #26 
The CAMHS team has finally come round! Yay! They're going to admit her to an ED unit as soon as there is an available bed (they're hoping within the next 24-48 hours), and will Section her if necessary. My D refused to see them when they came, which could make the whole thing very difficult, as unless the psychiatrist can see her then the sectioning might have to involve the police. Meanwhile we've been told to take her to A&E if there's any physical deterioration. God this is stressful. 
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14 year-old D diagnosed with AN in March 2016. Episodes of self-harming, anxiety, severe depression. Waiting for a CAMHS assessment to see if there's an additional diagnosis. 
deenl

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Reply with quote  #27 
God swash, I'm so sorry. I remember all too well the emotional turmoil of that phase.

Just to say it 'out loud'; you really are doing the very best thing in order to make the active phase of AN as short as possible and to tackle it very proactively. I am in awe and so sorry that your hard work has not yet had the desired result.

I hope the situation stabilises one way or the other and you get time to catch your breath before the next phase.

Take care,
D

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2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, tons of variety in food, stepping back into social life. Sept 2017, back to school full time for the first time in 2 years. Happy and relaxed, just usual non ED hassles. 

  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal. (but don't give up on the plan too soon, maybe it just needs a tweak or a bit more time and determination [wink] )
  • We cannot control the wind but we can direct the sail.
Torie

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Reply with quote  #28 
Swash - So glad to hear they're taking this seriously. And so sorry for how difficult it must be for you and your d, both. Hang in there! You're doing great. xx

-Torie

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"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
Bottle

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Reply with quote  #29 
That's good news, relieved things are moving.
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Bottle
D2 RAN as part of Pervasive Refusal Syndrome with a history of not walking for a year and being non verbal for a short while too. Considered to be Aspergers by everyone that has worked with her and by us but still awaiting a diagnosis that'll help us access support services she needs.
D1 recovered RAN and D3 doing pretty well considering the mayhem around here!
Penny31

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Reply with quote  #30 
Thanks. My D is in a remarkably calm mood tonight, despite everything that's going on. And she did eat a little bit this evening, picking at it for over an hour. Less than 10% of her total daily calorific requirements, and nowhere near enough to keep her out of hospital, but that's 10% more than yesterday (says me trying desperately to see the positives!).
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14 year-old D diagnosed with AN in March 2016. Episodes of self-harming, anxiety, severe depression. Waiting for a CAMHS assessment to see if there's an additional diagnosis. 
Penny31

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Reply with quote  #31 
Now it's all about waiting for a bed. And my D desperately ate her breakfast this morning in an attempt to stay out of hospital (her second breakfast, I should say - the first lot of toast, plus a full glass of orange juice, ended up thrown angrily onto her bedroom carpet). She really wants to prove she can do it, but as she's so far completely refused to engage with any health professional we've been told she needs to go into hospital for an assessment regardless, even if she's eating again. She must be so confused, poor thing, and the uncertainty about where she's going and when can't help. She says that if she's hospitalised they can force her to eat there, but she's going to stop eating again as soon as she gets home, which I think says it all when it comes to her attitude to eating. She won't need to regain a huge amount of weight as she's not been restricting for that long, but getting her to think more healthily about eating could take a while. A long while. 
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14 year-old D diagnosed with AN in March 2016. Episodes of self-harming, anxiety, severe depression. Waiting for a CAMHS assessment to see if there's an additional diagnosis. 
Sotired

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Reply with quote  #32 
Hi swash,
If that does happen then you just take her back for assessment.we sometimes-often actually-had as little as 48hours between admissions because my d was such a severe restricter.we had one time where she came out,drank nothing(as well as ate nothing) for 24 hours-as long as you can leave fluids-so back to doctors and from there she went straight back to hospital.
For some kids-particularly (in our case) with ASD running through the family,this is what it took for my d to understand that this would not be an answer we were going to accept.she could threaten but we would just do what we had to do.
We knew all the nurses by name...we could guide people around the hospital...but you do what you have to do and for us this was the only way.
Our story has twisted again since those days but I still remember those days...

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Sotired42
Torie

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Reply with quote  #33 
Quote:
Originally Posted by swash
She says that if she's hospitalised they can force her to eat there, but she's going to stop eating again as soon as she gets home....


Stupid Ed. Stupid stupid stupid Ed. 

Yes, maybe Ed will still be in control of her brain when she is discharged, but also maybe not. What's that saying about hoping for the best but planning for the worst? Some find that it's almost like a switch flipping when they regain the needed weight so you can hope for that. Others have an experience more like what Sotired warns you to prepare Plan B for.

Hoping for the best ... kudos to you for doing the right thing TODAY which is the only day we ever really have at our disposal.

Thinking of you. xx

-Torie

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"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
momupnorth

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Reply with quote  #34 
Hello,
I am wondering if there is anything new as to how this has all played out.  My d sounds very similar to yours Penny31 and I was wondering how she is doing?  D was diagnosed with anorexia April 2016, seemed to beat it and get wr fairly quickly.  Then, this past Feb she started spiralling down again but with other mental health issues added in and fewer, but still present eating issues (specifically, refusal to eat on a more sporadic basis).  We are experiencing self-harm and suicidal tendancies (which I notice another posted on this thread about) and her current team has brought up the 'diagnosis' of prs.  all I have read seems to jive with d's symptoms.
I am just wondering how your d is doing now? and what treatments helped her?
thanks.
momupnorth

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Mom Up North
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