User’s Guide | Rules | Contact a Moderator | Registration or Login Problems? | Eating Disorders Learning Center | F.E.A.S.T.



Custom Search of F.E.A.S.T. and Forum Content:
Register Latest Topics
 
 
 


Reply
  Author   Comment  
xianjaneway

Caregiver
Registered:
Posts: 14
Reply with quote  #1 

Hi, 

 

My daughter "The Firecracker" had a horrible transition from inpatient to PHP. Insurance sent the hospital (Shepard Pratt) a fax saying they weren't covering it, & they bumped her to the next level of care w/ no warning. [frown] 

Once there, she wasn't given her medication properly for OVER A WEEK. (She has OCD & ADHD as well.) She regressed horribly until I found out what was going on.

She was around a lot of people w/ self-harming behaviors. She's 12. She said at one point that she felt like she had to self-harm "in order to fit in." The family therapist & I thought we had dealt with this, but she self-harmed for the first time earlyt last week. [frown] 

She swore it was a 1-time thing. She's weight-restored, & continued to gain weight, and for the most part, followed the meal plan. She was excited about a trial day back at school today. 

When she came home, she had the worst panic attack I've ever seen. My husband said it "looked like an epileptic fit--completely involuntary." 

We finally got her up to her room, closed the door, talked for less than a minute, then went back in to find her scratching her wounds open with a sharp pencil. 

Good God, help us. [frown] 

I don't want to take her back to the hospital--she never EVEN THOUGHT about this stuff until she saw it there!! But on the other hand, holy cow, I can't help her through this. [frown] I've got to get her the help she needs. [frown] 

1) What are your experiences w/ Shepard Pratt--have any of you been there, or had a child there? 

2) Should I try & find her another facility? 

I'm sick to my stomach right now. [frown] 



__________________
Mother to 12yr old with ARFID, Aspergers, OCD, ADHD, SPD, ODD, and a partridge in a pear tree.  Inpatient helped her gain 20% of her weight & height. Mom needs chocolate.  http://www.iprefercaptain.com has a lot of our ED story.
Foodsupport_AUS

Avatar / Picture

Lead Moderator
Registered:
Posts: 3,157
Reply with quote  #2 
Sorry that the first transition back to school was so rocky. I think it is important not to over-react in management, that is one meltdown after the first day does not mean she needs to go back to any form of day program. What she does need to learn is coping skills to deal with distress that don't result in harmful behaviours. Things that could be useful include learning DBT skills. 

As for Sheppard Pratt, it has not got rave reviews here. It is worth going to the providers forum and searching, but this is one of the threads  http://www.aroundthedinnertable.org/post/sheppard-pratt-center-for-eating-disorders-5601566?highlight=sheppard&trail=25#gsc.tab=0

__________________
D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
xianjaneway

Caregiver
Registered:
Posts: 14
Reply with quote  #3 

Thansk Foodsupport. Yes, I read that review before we went inpatient, and talked to the staff about it. They were able to cite specific things they'd changed (like their handbook policies that got their own blog posts) so I thought the information was outdated. The Firecracker had shown suicidal tendencies, and I was scared. 

However, everything else---the fact that they ONLY focus on weight restoration, the horrible communication w/ parents, the gloomy atmosphere, and the absolutely inept staff mixed with the absolutely wonderful staff--was all true. I could scream. 

 

 


__________________
Mother to 12yr old with ARFID, Aspergers, OCD, ADHD, SPD, ODD, and a partridge in a pear tree.  Inpatient helped her gain 20% of her weight & height. Mom needs chocolate.  http://www.iprefercaptain.com has a lot of our ED story.
eternalhope

Caregiver
Registered:
Posts: 87
Reply with quote  #4 
Dear Xianjaneway, my d is also 12, has OCD, ADHD, ODD, and was released from 14 total weeks of treatment 2 weeks ago. It's tough! But you're doing a great job. She's eating, and I completely agree with Food support that you need more time to observe what's going on. My d never self harmed but scatched herself on a couple of occasions that drew a small amount of blood. This was during an anxiety loop.. she kept saying the same thing over again and couldn't pop out of it in a major meltdown. Even if you have issues with her previous care, she's with you now, and you have to straddle the line between getting her to eat (and you are, Which is great) and working on the other behaviors. I wouldn't be so quick to send her back into a program, unless she's not eating, or is a threat to herself or others. You want to get her back into real life (not treatment life) as much as possible.
Mamaroo

Caregiver
Registered:
Posts: 156
Reply with quote  #5 
Hi Xianjaneway, so sorry to hear about your d.

Mine was the same; she was sent home after 2 weeks IP (general children's ward, not ED ward). Since she was 10, the hospital decided that she was too young for the day program and she continued with treatment as an outpatient. The first couple of weeks were very hard. Constant crying. I wanted to take her back so many times, because obviously she wasn't well enough (only 72% WR). But they didn't take her back. She lost all the weight she gained at IP (2kg). She was very close to going back, but she really wanted to stay at home, so slowly she started to drink more and more Ensures and stopped the weight loss and started to gain weight (only having Ensures). Hindsight, the hospital was right, of course. She needed to get well at home and then at school, with friends and while returning to the normal routine of her life.

My d also started to self harm. She took a pin and cut herself. So I had to take all sharps away, I hid all knives, proper scissors, even sharp pencils (!). All I had was a kindy scissor in the kitchen (turns out one can do a lot with a kindy scissor, including cutting meat). Interestingly enough, she never saw anybody else SH, since during IP, she was always surrounded by babies. When she returned to school I also had to check her, because she would find a pin at school and bring it home to cut. She is now WR for 7 months and didn't SH for over a year, only now did I bring the knives back - still happy with my kindy scissors, though.

I can highly recommend Eva Musby's book "Anorexia and other Eating Disorders: how to help your child eat well and be well" and videos: http://anorexiafamily.com/videos-eating-disorder-anxiety-child/
She gives detailed advice on how to refeed your child and how to cope with anxiety, a real life saver

Maybe your d could go back to school just for a couple of hours each day and stretch it more and more as she is coping better. I still had to go to school during recess and lunch to supervise her meals (she would sit with me in the car and we would play candy crush as a distraction). My d struggled with school, but as her weight increased, she was able to cope better.

Best wishes

__________________
D became obsessed with exercise at age 9. Started eating 'healthy' at age 9.5. Restricting couple of months later. IP for 2 weeks at age 10. Slowly refed for a year and WR at age 11 in March 2017. Challenging fear foods and behaviours now.
xianjaneway

Caregiver
Registered:
Posts: 14
Reply with quote  #6 

Wow, thank you *so much*, both of you. <3 It's good to hear that there's hope, that it's a long process, that we CAN beat this thing (again) and it's just going to take time and learning and practice and the right doctors. <3 

We have an appt w/ a new provider on the 31st. Hopefully that will go well for us. 


__________________
Mother to 12yr old with ARFID, Aspergers, OCD, ADHD, SPD, ODD, and a partridge in a pear tree.  Inpatient helped her gain 20% of her weight & height. Mom needs chocolate.  http://www.iprefercaptain.com has a lot of our ED story.
Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.

F.E.A.S.T. Families Empowered and Supporting Treatment of Eating Disorders
is a 501(c)3 charitable organization committed to maintaining the Around the Dinner Table forum as a FREE service for any caregiver of a loved-one with an eating disorder.

P.O. Box 1281 | Warrenton, VA 20188 USA

US +1 855-50-FEAST | Canada +1 647-247-1339 | Australia +61 731886675 | UK +443308280031 

This forum is sponsored by F.E.A.S.T., an organization of parents serving parents and caregivers of patients of all ages with anorexia, bulimia, and other eating disorders. Information and advice given on this forum does not necessarily represent the policy or opinion of F.E.A.S.T. or its volunteers and is meant to support, not replace, professional consultation.

F.E.A.S.T. is registered as a nonprofit organization under section 501(c)(3) of the United States Internal Revenue Code.

Terms of Use | Privacy Policy | Community Rules | Forum Rules | F.E.A.S.T. Principles | YMadmin | WTadmin
Custom Search of F.E.A.S.T. and Forum Content: