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Mamaroo

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Posts: 322
Reply with quote  #301 
Hi,

Thanks for the update. So lovely to read about your conversation with your d [biggrin].

To increase the calories, you can try and give her an ensure plus, which has 300 cal and doesn't feel heavy at all.

I also cooked rice in coconut milk - great way to add calories!

You can easily get to 600 cal for a meal by ensuring that you leave the fat on meat, skin on the chicken etc. Don't bother too much with veggies and salads though as they are very low on calories (add them if you like, but don't bother counting them), root vegetables excluded of course. Now that my d is WR I plate her food as follows: 1/4 for vegetables, 1/3 - 1/2 rice/potatoes/pasta and rest protein. She still doesn't have hunger cues, so has to rely on learned eating behaviour and having regular meals.


__________________
D became obsessed with exercise at age 9. Started eating 'healthy' at age 9.5. Restricting couple of months later. IP for 2 weeks at age 10. Slowly refed for a year and WR at age 11 in March 2017. She is back to her old happy self and can eat anything put in front of her. Now working on intuitive eating.
tina72

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Posts: 1,047
Reply with quote  #302 
Hi,
I would recommend to try Benecalorie. It is a small container of 44 ml and it has 330 calories and does not taste at all. You can easily add it to rice and to all noodle sauces. It is also great in porridge. It will help you to increase calories on a small amount.
Tina72
Honey_Badger

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Posts: 302
Reply with quote  #303 
I once made up some index cards of my son's favorite snacks, around 350 calories each. I aimed for 5 a day, plus my son drank a lot of milk.

One of them was something like:
RITZ CRACKER SANDWICHES
8 Ritz crackers
1 T canola oil (artfully drizzled on top of the Ritz crackers until it seeps in imperceptibly)
1 oz cheddar cheese (about 1 thick slice - cut into four quarters)
(a couple grapes)

The crackers are 128 calories
1 T oil is 120 calories
1 ounce cheddar cheese is 114 calories

total: 362 calories


SPAGHETTI
3/4 Cup spaghetti  (165)
1/2 Cup Rao's marinara sauce  (80)
1 T olive oil  (120)
1 T parmesan cheese   (22)
(a little parsley)

total:  387


atdt31_US

Caregiver
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Posts: 387
Reply with quote  #304 
Journaling / A Day in the Life of One Type of ED:

1.  Woke up normal time.  Ate bowl of beef barley soup for breakfast.  Took meds without delay or resistance.  Did reject the muffin I had planned for her to eat in the car on the way to school.  

2.  Went to school and ate whole lunch plus the extra snack and dessert plus the snack the after-care program offered "because I was so hungry"

3.  Got home and when offered dinner out, was excited and, from a list of options I provided based on geography, she picked a sushi place (she will not eat any fish at all but I told her they'd have rice and chicken).  Stopped by cake place on the way to get myself the best gluten free dessert I know of and she also got a small cake for herself (we took them to go).  

4.  Got to sushi place and she read the menu and had her selection before I did.  Asked if she could get two things.  I agreed, blindly, and when the waitress came she asked for teriyaki chicken and a sweet radish roll and asked if they could add carrots.  I was surprised, to say the least.  Edamame came out as app and she tried it -- liked it okay but not the "fur" on the pod, so squeezed some out and ate the off the plate. Said she'd eat just the pea part at home but no furry part -- I had told her they were high protein and she said I could add them to some stuff.

5.  Then our meals came out.  She was beaming, kept saying how she loves this place, called it heaven, and happily ate 6 out of 8 of the roll pieces and a very large portion (I likely would not have eaten as much) of the teriyaki chicken.  The chicken pieces were each two big or three small bites.  She ate it quickly, and raved.  

6.  This from the girl who had stopped eating postage-stamp sized pieces of meat at home for a bit -- never verbalized it, just noticed she was eating small or shredded meat better so I started just serving it that way to get it in her without stress.  I will def be going back to some of our old meals with "real" pieces of meat.  

7.  She ate and said she was full but it did not hurt. Said did not have any tummy pain all day and felt really good and happy.  We reviewed she had eaten protein with breakfast and also had a large bowel movement before school, and that she has not missed any medicine for a long stretch (she usually resists at least one day per week) and maybe we should see if we could keep this going to see if she could be the boss of her tummy pain by doing these things.  

8.  She is getting braces tomorrow, and really really wants them, so that is at least part of her great mood today -- but I think also, her tummy is doing well because she is stooling, eating, and medicating better in the last 8 days or so, all in a row.  Took nighttime medicine quickly and well tonight, too (this is usually the one she stalls on or begs to skip).

9. I swear, days like this, it is truly impossible to see how any doctor would look twice at her, how anyone could say there is an ED, how anyone would think for a moment she should take psych meds and buy the risks they come with.  (we have not agreed to give psych meds to date, but her therapist suggests it, as does her ped, although neither give much detail on what, about her, makes them recommend it -- and the child psychiatrist is not jumping to meds yet).

10.  I have no idea what she weighs because I have been banned from weighing her, and there is no system in place for anyone to weigh her.  We see child psychiatrist/ed dr in three months -- I think it unlikely I live with the no-weigh rule that long, but as long as her state is for sure good, I will try. 

11.  We know braces right now might backfire, but for a variety of reasons I have convinced myself that now is as good or bad a time as any and she really wants them and has promised to not reduce intake as a result (based on pain or worries of food getting stuck in them at school lunch).  Time will tell.

__________________
Mom of either pre-diagnosis or non-ed underweight 12 yoa (as of March 2018) kid here to learn how to achieve weight gain.  BMI steadily in the mid 12's for nearly her entire life.  Born 2006. UPDATE:  April 2018 diagnosed ARFID, I believe, based solely on weight being less than 75% of Ideal Body Weight (not sure if he also considered low bone density to be a significant nutritional deficiency - not positive he knew her bmd).
Mamaroo

Caregiver
Registered:
Posts: 322
Reply with quote  #305 
Hi,

Thanks fot the update. I am in the same boat as you with no 10:

"10.  I have no idea what she weighs because I have been banned from weighing her, and there is no system in place for anyone to weigh her.  We see child psychiatrist/ed dr in three months -- I think it unlikely I live with the no-weigh rule that long, but as long as her state is for sure good, I will try."

We were discharged in December from treatment at our local hospital and referred back to our GP. We went to see her in January for a medical check up. The dr told my d she could choose supper (snack after dinner), both what she wanted and how much. That ended in disaster, so I had to claw back supper otherwise she would just be having nothing. I am not going back to her! So we are without dr and without scale. I'll will be measuring her height to make sure she is still growing. In the meantime I'm looking for a new gp.....

So happy to hear the dinner out went to well!!!

__________________
D became obsessed with exercise at age 9. Started eating 'healthy' at age 9.5. Restricting couple of months later. IP for 2 weeks at age 10. Slowly refed for a year and WR at age 11 in March 2017. She is back to her old happy self and can eat anything put in front of her. Now working on intuitive eating.
atdt31_US

Caregiver
Registered:
Posts: 387
Reply with quote  #306 
Mamaroo -- changing or being between doctors, or even with one you'd like to move on from, is stressful.  Sorry for you to have that experience.  Our original pediatrician retired two years ago and I'd say we are still a bit iffy with real trust in the new provider.  I suspect I will blind-weigh at home at some point, especially if I start to see an uptick in anxiety or lessening of state, just to be sure there is no loss occurring -- I am not wiling to have that happen unchecked for three months.  The odd thing about taking away the scale is that my d is proud when her weight goes up, and does a happy dance that seems totally genuine.  Oh well, I have fought the doctors on the big stuff I think can hurt her (sometimes I fight to get more treatment, sometimes I fight to opt out of some forms of treatment offered) -- so I am not going to battle on this point right now.  But it seems very inconsistent with what others on this forum experience ...


Braces went on this morning.  Orthodontist knew her eating situation and said some helpful things to her about being sure to keep eating and that smoothies and shakes would be great on days she had too much pain for steak.  Definitely worth having let him in on our concerns before the appointment!  And my d is grinning ear to ear, thrilled to have braces so she is one step closer to a nicer smile.  Big, and needed, confidence boost for her right now. 

__________________
Mom of either pre-diagnosis or non-ed underweight 12 yoa (as of March 2018) kid here to learn how to achieve weight gain.  BMI steadily in the mid 12's for nearly her entire life.  Born 2006. UPDATE:  April 2018 diagnosed ARFID, I believe, based solely on weight being less than 75% of Ideal Body Weight (not sure if he also considered low bone density to be a significant nutritional deficiency - not positive he knew her bmd).
Mamaroo

Caregiver
Registered:
Posts: 322
Reply with quote  #307 
Hi, Atdt31_US, so glad she is happy with the braces and that the orthodontist was singing from the same hymn sheet!
__________________
D became obsessed with exercise at age 9. Started eating 'healthy' at age 9.5. Restricting couple of months later. IP for 2 weeks at age 10. Slowly refed for a year and WR at age 11 in March 2017. She is back to her old happy self and can eat anything put in front of her. Now working on intuitive eating.
Honey_Badger

Caregiver
Registered:
Posts: 302
Reply with quote  #308 
Your sushi restaurant story sounded so familiar to me -- when we were in the throes of it, my son discovered Hibachi restaurants and ate so much more food there than he would at home!  I went into a great deal of debt that year just paying for meals out, but it felt worth it.  [smile]

Don't you just wish someone would invent a secret scale chair? Kids could sit in it and it would print out their weight up on a secret printer in your bedroom....You could know and they would be none the wiser....

Great news on the braces!  We survived wisdom tooth surgery this month and are headed towards braces come June with much trepidation.  




atdt31_US

Caregiver
Registered:
Posts: 387
Reply with quote  #309 
Thanks Mamaroo and HoneyB -- 

Braces are going okay.  Not as well as I had hoped.  Not as poorly as I had feared.  Day two was the worst so far, but we are really babying her on soft foods so we'll see how long it takes until it feels like she is eating normally again.  Volume is probably down  bit but not huge, it is more of the challenge finding the right texture, etc, to get a "good enough" amount in her.  

Tylenol does not seem to be doing much for pain, but Orajel has helped a lot.  It is sort of numbing (she says) so eating with it is difficult, but it has really been the best thing to make her feel better between meals and at bedtime.  Tomorrow we might try Ibuprofen and see if it is more effective than the Tylenol has been.  

Her sensitivity to the braces and having real struggles eating real food so far (got them put on May 10), tells me we probably were wise to put off the oral surgery for two years or so.  It would have been much much more disruptive.  On the other hand, by doing it this way she'll likely have to be in some form of braces for four years instead of two.  And the surgery will be necessary at some point, it just was not critical that it be done right now so we opted to wait to see if we could get more weight on her so she could do well in the surgery itself, and withstand any weight loss a bit better.  

__________________
Mom of either pre-diagnosis or non-ed underweight 12 yoa (as of March 2018) kid here to learn how to achieve weight gain.  BMI steadily in the mid 12's for nearly her entire life.  Born 2006. UPDATE:  April 2018 diagnosed ARFID, I believe, based solely on weight being less than 75% of Ideal Body Weight (not sure if he also considered low bone density to be a significant nutritional deficiency - not positive he knew her bmd).
Mamaroo

Caregiver
Registered:
Posts: 322
Reply with quote  #310 
Hi,

I used to wear braces for 6 years in total and wore every type under the sun. She will get used to them very soon. Just keep on presenting the meals as per normal. If the pain persists longer than a week I would go back to have the braces adjusted, maybe they were set too tight. I hope the ibuprofen works better 😁

__________________
D became obsessed with exercise at age 9. Started eating 'healthy' at age 9.5. Restricting couple of months later. IP for 2 weeks at age 10. Slowly refed for a year and WR at age 11 in March 2017. She is back to her old happy self and can eat anything put in front of her. Now working on intuitive eating.
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