User’s Guide | Rules | Contact a Moderator | Registration or Login Problems? | Eating Disorders Learning Center | F.E.A.S.T.



Custom Search of F.E.A.S.T. and Forum Content:
Register Latest Topics
 
 
 


Reply
  Author   Comment  
navyteal

Caregiver
Registered:
Posts: 1
Reply with quote  #1 
Hello everyone,

Our DD was diagnosed with AN only a couple of months ago at age 11 and has made a remarkable recovery - 26lbs in less than 4 months.  We are moving from Florida to the UK in a couple of weeks and are looking into recommendations for health providers in our area.  We will be living in Sunningdale. We are already looking at trying to find a GP who can refer us to a specialist but are a bit lost.  We will continue to Skype our AMAZING therapist here but feel our daughter needs someone locally - the sooner the better - since this will be a time of many transitions (new school, new home, new friends) and we want her to feel supported.  If anyone has any doctors/providers in or near our area we would greatly appreciate it.
Ping_Pong

Caregiver
Registered:
Posts: 24
Reply with quote  #2 
Firstly - welcome to the UK, when you get finally here!  Not sure if you are Brits returning or Americans moving here - either way, hope the move goes well.

I'm not from the Berks area so can't comment on what there is locally, but you aren't a million miles from the Maudsley Hospital itself - about an hour and a half by train, and you don't even need to go all the way into central London and out again, it seems.  Would still be the better part of a day out, though.  Just a thought...  I don't know how easy it is to get referred there, or whether you can self-refer - anyone else know???  

Otherwise, I hope someone more local will be along soon who can recommend somewhere in Berkshire.  Perhaps someone out there knows more about the Berkshire Eating Disorders Service, based in Reading?  Here's a link with some contact numbers etc: www.berkshirehealthcare.nhs.uk/our-services/adult-healthcare/eating-disorder-service/.  Unfortunately, none of the links on that page seem to work, though...

Another avenue might me to contact BEAT, the UK-based eating disorders support group.  They have a section on finding support services, and if you were to contact them, they might give more detailed advice.  The BEAT site also goes into how the NHS ticks in terms of  eating disorders, in case that is all new to you. Here's their website: www.b-eat.co.uk.

We have had excellent support from our GP who referred us quickly to our local NHS Eating Disorders Intensive Community Team (EDICT), part of the Children and Young Persons' Service (CYPS).  Good support through FBT, including a relapse.  I truly hope you get similar care yourselves.

Let us know if we can help in any way... such as deciphering UK NHS acronyms!

Foodsupport_AUS

Avatar / Picture

Lead Moderator
Registered:
Posts: 3,103
Reply with quote  #3 
Welcome to the forum navyteal and what a great job you have done at weight restoration so far. 
Sorry I can't help you with the local information.

__________________
D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
Torie

Avatar / Picture

Caregiver
Registered:
Posts: 4,423
Reply with quote  #4 
Welcome navyteal - I'm in the US so I can't help much with UK information, but I'm glad you have a good team here because that will help get things off on a good foot in a new system.  I'm really impressed by how well you and your d have done so far.  Kudos to you both!

Please feel free to ask all the questions you like. xx

-Torie

__________________
"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
cjac16

Caregiver
Registered:
Posts: 104
Reply with quote  #5 
We come under the CAMHS for your area which is based in Wokingham where they do have an ED unit  - not sure exactly what they have but know my d was told she may have to go their as a day patient.  She actually had therapy once a week at the ED department at CAMHS in Maidenhead.  We actually live in Maidenhead and I don't know whether this ED department covers the area or whether there is one in each town.  I think you would have to be referred by your GP but the number for Wokingham is 0300 365 1234.  They may well be able to tell you what need to do.
NELLY_UK

Avatar / Picture

Caregiver
Registered:
Posts: 1,898
Reply with quote  #6 
Huntercombe Hospital in Berkshire have a Camhs service and its ED hospital is one of the best in the UK. They also do day patient there. Try to push for their CAMHs as you will be well looked after by a team of excellent experts.
__________________
NELLY D 18 bulimic since age 12, diagnosed in 2011. 20 months useless CAMHs,7 months great IP, home March 14..... more useless CAMHs.now an adult & no MH services are involved. I reached the end of my tether, tied a knot in it and am hanging on. Bulimia treatmentis in the dark ages in West Sussex.
evamusby_UK

Avatar / Picture

Registered:
Posts: 801
Reply with quote  #7 
If cjac thinks Wokingham covers your area, then a GP would be referring you to the CAMHS here: https://directory.wokingham.gov.uk/kb5/wokingham/directory/service.page?id=SBjklHhAZr8

https://www.berkshirehealthcare.nhs.uk/our-services/childrens-healthcare/child-and-adolescent-mental-health-services-camhs/
and
https://www.berkshirehealthcare.nhs.uk/our-services/childrens-healthcare/child-and-adolescent-mental-health-services-camhs/

and that's the only access you'd get to services unless you go private (you can't shop around for NHS care). And private is not necessarily better (often it's not good).

Re the suggestion of Maudsley hospital: if it's not local to you I'm pretty sure you need a referral, as in, for a second opinion. You'd have to start with your local CAHMS.

I suggest you phone that Wokingham CAMHS and if they do cover your area, self-refer your daughter right away, as for eating disorders in England, unusually, self-referral to these specialists is allowed, so you don't need to first go through a GP. Actually I see this is confirmed on their website, which is a hopeful sign they are up to date. Hopefully they are also up to date with providing something similar to  family-based treatment.

Thought: the CAMHS may even point you to a GP who in their experience works well with them?

And if this Wokingham CAMHS isn't for your area after all, at least they will know who is. And then this and other forums might know them and tell you of their reputations.





__________________
Eva Musby, mother, author, produces lots of resources for parents at http://anorexiafamily.com and on YouTube https://www.youtube.com/user/EvaMusby/playlists
[comp]
tina72

Caregiver
Registered:
Posts: 220
Reply with quote  #8 
Just a stupid question, but as it occurs in many posts and this is not my mother tongue: What is a GP?
Tina72
evamusby_UK

Avatar / Picture

Registered:
Posts: 801
Reply with quote  #9 
Ooh it's nice to get a question that's simple to answer!!!

A GP is General Practitioner. A family doctor. In the UK they are the gatekeepers to specialist services, except that specifically in England, for eating disorders in children and young people, self-referral to specialists is now allowed.

__________________
Eva Musby, mother, author, produces lots of resources for parents at http://anorexiafamily.com and on YouTube https://www.youtube.com/user/EvaMusby/playlists
[comp]
tina72

Caregiver
Registered:
Posts: 220
Reply with quote  #10 
Thanks Eva Musby!
In Germany that is called "Hausarzt". I am learning a lot english around here. Maybe the only positive thing in this experience. [smile]
Tina72
Torie

Avatar / Picture

Caregiver
Registered:
Posts: 4,423
Reply with quote  #11 
Quote:
Originally Posted by tina72
 I am learning a lot english around here.


Haha, yes.  But probably a lot of words you were hoping you would never need to know.  xx

-Torie

__________________
"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
tina72

Caregiver
Registered:
Posts: 220
Reply with quote  #12 
Hi torie,
you are so right! My d collected some words from hospital she NEVER wants to hear again and wrote them on a paper which she put on the wall in her room. Maybe I will do something like that when we are through this stuff...
When I joined in here I thought I will never be able to talk quite well to you all because I didn´t use my englisch for more than 25 years. And now I feel much more confident. I surely make a lot of mistakes, but you seem to understand me and thats enough at that point...[smile]
Thanks for the help and the little nice posts in between, that makes it much better!
Tina72
Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.

F.E.A.S.T. Families Empowered and Supporting Treatment of Eating Disorders
is a 501(c)3 charitable organization committed to maintaining the Around the Dinner Table forum as a FREE service for any caregiver of a loved-one with an eating disorder.

P.O. Box 1281 | Warrenton, VA 20188 USA

US +1 855-50-FEAST | Canada +1 647-247-1339 | Australia +61 731886675 | UK +443308280031 

This forum is sponsored by F.E.A.S.T., an organization of parents serving parents and caregivers of patients of all ages with anorexia, bulimia, and other eating disorders. Information and advice given on this forum does not necessarily represent the policy or opinion of F.E.A.S.T. or its volunteers and is meant to support, not replace, professional consultation.

F.E.A.S.T. is registered as a nonprofit organization under section 501(c)(3) of the United States Internal Revenue Code.

Terms of Use | Privacy Policy | Community Rules | Forum Rules | F.E.A.S.T. Principles | YMadmin | WTadmin
Custom Search of F.E.A.S.T. and Forum Content: