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toothfairy

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Reply with quote  #1 

http://www.bodywhys.ie/m/uploads/files/blog/Maudsley_Flyer_22_Feb-3.docx

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Son,DX with AN, (purging type) age 13 in October 2015 ,  (4 months immediate inpatient) ,  Now Phase  2 , making progress every day. Living life to the full like a normal teen. We are not out of the woods yet, but we can see the light at the end of the tunnel, thanks to ATDT.
Foodsupport_AUS

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Reply with quote  #2 
Thanks Toothfairy. Having looked at the flyer it is for the New Maudsley Method, not traditional FBT information. We have a number of similar courses available in Australia. I found the course we did really helpful early on in D's illness. It helped me to learn reflective listening and some motivational interviewing skills which are still useful today.
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D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
Kali

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Reply with quote  #3 
Hi Toothfairy

A little off topic, but how is your son doing? I hope that no bad news recently is good news!!!!

Kali

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toothfairy

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Reply with quote  #4 
Thanks Foodsupport, sorry I dont know how to edit a topic to New Maudsley.

Hi Kali, Thanks so much for asking, He is doing really well.
We are making good progress. 
Since I "took over" from the dietitian in December, I have fed him like a Rugby player!
He is gaining weight, growing by the day, becoming less rigid by the day.
He is 15 1/2 years old now,and fully functional, he will now actually come and sit down for all meals, or ask are they ready, as opposed to me asking him to come to the table.
The odd time he will actually say "THAT WAS NICE"!!!!.
He is eating his lunches at school, and he will eat most fear foods, with minor discomfort.
As he is in an exam year,he has had lots of half days, and it has all been great for me to give him really "hearty" meals, for many lunchtimes at school term as well as dinner in the evening.
He will go out with his friends and have a bowl of chicken wings and fries sometimes, or go out for lunch and buy a sandwich.
It is absolutely amazing the progress we have made in 3 months when we upped his intake by about 1000 cals a day.
He still has some behaviours and fears, and he does not eat intuitively, it is all about following the "plan " for him,which is 3 meals and 2 snacks, of whatever he is given, that he goes by.
He is able to tell me, if he was out and missed a snack or desert, if he was in somebody's house, he could tell me (if asked) that he got dinner but they did not offer desert , so he knows he needs one.
He is in great form and has a girlfriend.  We are getting along very well, and he is cheeky, witty, and does all other normal teen stuff.
He has never wanted to or asked to go back to PE/Sport.
He has grown out of all his clothes, and looks great. 
He still sees his psychologist monthly, and he likes her. We also check in with our family T every couple of months.

The elephant in the room is that he has not been weighed since he last saw the dietitian, and as we will not be going back down that road, we are just pushing on.

We just decided to keep going as we are doing so well, and I guess his bmi must be around 21 or 22 now, we do not want to rock the boat, and we want to push him up a good bit higher than this, and then we will have to tell him that his dietitian was wrong, that 19 or 18.5 is not an acceptable bmi,and he will not get into recovery at those low weights.....but that's a problem for another day. He is not questioning anything, so we are in a good position to keep going.
Of course as the weight is going on he is caring less about mirror checking and selfies a hundred times a minute, and the butt clenches and arm pinching,neck Pinching for fat etc behaviours have all stopped completely.
It is truly amazing.
Thanks Kali, and to all here for the amazing support and solid advice.
We will be forever grateful.
I hope your D is doing well too Kali.
XXXXX
TF

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Son,DX with AN, (purging type) age 13 in October 2015 ,  (4 months immediate inpatient) ,  Now Phase  2 , making progress every day. Living life to the full like a normal teen. We are not out of the woods yet, but we can see the light at the end of the tunnel, thanks to ATDT.
iHateED

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Reply with quote  #5 
What a wonderful post toothfairy!  I have tears of joy for you right now! His brain sounds like it is really healing as you see the symptoms lessen as time goes by.  I too, am in favor of ditching the dieticians for younger suffers and teens too.  Getting back to normal is not by following a dieticians "plan" which in several of our attempts were always set way too low! 

Cheers to you [smile]
toothfairy

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Reply with quote  #6 
AHH Thanks iHateED,
I am touched by your generous comments, especially after you have done this X 2.
You are amazing and an inspiration.
XXX Cheers to you too!!! XXX
Hope your Girls are very well!!!

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Son,DX with AN, (purging type) age 13 in October 2015 ,  (4 months immediate inpatient) ,  Now Phase  2 , making progress every day. Living life to the full like a normal teen. We are not out of the woods yet, but we can see the light at the end of the tunnel, thanks to ATDT.
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