Registered: 1284535839 Posts: 3,489
Reply with quote #26
nafe, you may like to print out this article and take it into the hospital. One of the things they talk about is encouraging parents to be responsible for food when they are both in hospital as well as at home. Your D remains ill in part because she is not eating enough to nourish her brain and regain the lost weight. She is too ill to do it herself. Often NG feeding is a relief early on but ultimately she will need to eat the that scares her, it is the only way she is going to get better. The links in the bottom of the article include detailed meal plans, you could print them out and use them yourself at home. Worrying about her water intake and vitamins are much lower on the scale than making sure she is getting adequate food. Much of her fluid will come via that food too, and although vitamins are very helpful in recovery the macronutrients are more important.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5331684/#MOESM1 I would also be keen for them to push her weight higher than it has previously been. EDITED TO ADD : The article is about the refeeding program at CHOP. Interestingly enough they treat all those with ED's including ARFID, Bulimia, AN and others with the same meal plan. All no choice - ie. magic plate. __________________ D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
Registered: 1454901521 Posts: 272
Reply with quote #27
Hi Nafe, so sorry to hear about your d, sorry about my late reply, somehow I missed your post 😔. We're are also in WA, I'm assuming your d is at PMH, we were treated (very successfully)
there, so you are in good hands ☺.
First of all, the dr told my d to take a good multi vitamin and calcium, I'm sure they will tell your d the same, if not just ask them to.
When your d is discharged from ip, will she be joining the out patient program? My d was too young, but I think it would be a good transition for your d.
Also let the dr and your care coordinator tell your d she is not in charge of her meals and that following the meal plan is not optional. Of course you will get opposition, she will tell you she won't eat etc, just ignore her, don't try and reason with her, just tell her that's what the hospital requires and that you are just following what they are saying.
My d was unable to eat and took all her meals as supplements, ensures plus x 6 a day. It took us 7 weeks to get to 6 ensures. It started with half an ensure a day and we slowly increased to 6. We used incentives such as playtime on her ipad and monetary incentives, paying her for every day she followed the mealplan. The stick was going back to ip. Even though she wasn't eating any food, she was still required to taste all the meals I prepared. This was very crucial to getting her to eat again.
As far as I know, PMH doesn't recommend patients to stay vegan, and would only allow vegetarianism if she was brought up that way. Since you are not vegetarian, she shouldn't be either, the end goal is to have her eat with the family as before and it's achievable.
Now for your fist question, water. No one can deny that Perth's water tastes awful, I just asked my d and she confirmed that it tasted even worse when she was ill. I use to add cordial and flavouring to get her to drink it, even in her drink bottle at school. She also used to drink coffee. I made it with instant coffee and full cream milk. These days she drinks milkshakes and smoothies like her sister and very rarely has coffee. She loves juice as well and as a bonus it comes with more kilojoules than water.
During refeeding we had to change the way we parent. I had to learn to be more strict, but with compassion. I had to say what I mean and mean what I say. I had to present all her meals every day at the same time with the expectation she would eat them. I had to learn not to give in to her ED voice. I had to put on my big girl pants and it was very hard, but worth in the end.
Use all the hospital's resources. I used to email our care coordinator every week with an update so that she would know what to talk about with my d. They only provided individual therapy after wr, she only attended a couple of sessions, before they decided she didn't need them. We were discharged in December from the out patient service and I still feed her 6 times a day and still plate her meals (as I do for her sister in any case).
Dont loose hope, it's good that she is eating again, just supplement with ensures if she isn't eating enough.
Good luck and sending you plenty of hugs 🤗🤗🤗🤗🤗 __________________ D became obsessed with exercise at age 9. Started eating 'healthy' at age 9.5. Restricting couple of months later. IP for 2 weeks at age 10. Slowly refed for a year and WR at age 11 in March 2017. She is back to her old happy self and can eat anything put in front of her. Now working on intuitive eating.