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steveandmissy

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Reply with quote  #1 
Hello all, been quite a while since I've posted on here. Today officially marked a year since our d has been weight restored for a whole year. She has held her weight to the goal weight steady for a year. Shes actually even up a pound a half as of the last appt. It seems like a lifetime ago we were deep in the fight with ED. Its by no means perfect and still has some things to work on but the difference is night & day. She is now so loving to her mother and wants to be around her all the time. She is social with her friends again. Even told a few of them about her ED. She goes to parties, hangs out with friends, etc. She doesn't seem to have any fear foods any more as she has eaten everything we've put in front of her. The things she doesn't eat are the same things she didn't like before ED.

Dietician says seeing her every other month is fine and will prob move to quarterly by next year. Therapist feels the same way as they have talked to each other. Shes made a ton of progress since getting out of the treatment center at McCallum Place. Shes still following a meal plan but hoping we can start to ween off next year. The only behavior left is the wanting to stand most of the time at home. Other times, shes fine. Sits at all meals, sits in long car rides (recently did 3 1/2 hour car ride) etc. Therapist said it will fade as she gets longer into her recovery. Both teams amazed at how well shes done this past year. Hope this message of hope helps and thanks for listening. As I've said here before, all's fair in love and war and this is both. 
Ping_Pong

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Reply with quote  #2 
Fantastic news!  So pleased for your D and the whole of your family.  I feel your relief! [smile]
scaredmom

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Hi i needed this beautiful news today. We are 4 months in. Doing well but feels like it will never end. Thank you for this. I am so happy for all of you. You fought the hardest battle and everyone is the winner. Love to you all. Happy tears!
toothfairy

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Reply with quote  #4 
Hi there Steve
Thanks for dropping by with the good news.
I am so pleased for you all.
I just cant help myself but to tell you that your Girl cannot just maintain, she needs to gain into her 20"s. If she hasnt gained in a year, then that is a problem.
The standing is a problem too. It is disordered & she is likely being beaten up mentally by ED to stand.
My guess is your D needs to gain weight immediately...Thats where I would be heading next !
Best wishes
TF

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Son,DX with AN, (purging type) age 13 in October 2015 ,  (4 months immediate inpatient) , Then FBT at home since.and making progress every day. He is now in good recovery, and Living life to the full like a normal teen. We are not completely out of the woods yet, but we can see the light at the end of the tunnel, thanks to ATDT. Hoping to get him into full recovery and remission one day at a time.
toothfairy

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Son,DX with AN, (purging type) age 13 in October 2015 ,  (4 months immediate inpatient) , Then FBT at home since.and making progress every day. He is now in good recovery, and Living life to the full like a normal teen. We are not completely out of the woods yet, but we can see the light at the end of the tunnel, thanks to ATDT. Hoping to get him into full recovery and remission one day at a time.
Kali

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Reply with quote  #6 
Hi Steve and Missy,

What wonderful news that your d. has made progress and is doing better now! It gives hope to others who are in the trenches. I'm so happy for you and your d. and your family. I can remember when you first came on the board and asked for help because your d. was ill. And you quickly got her into effective treatment. I also remember you writing that she was having problems with her mom, and am really happy to hear that their relationship is better now.

I think that there have been other families who have grappled with their child standing and if you were interested you could search on the board and see if there are any good ideas that others have tried to work on lessening that behavior. You have been such effective and loving parents that I'm sure you will be able to help her with it and guide her through her teenage years.

Well done! 

Kali

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Food=Love
Foodsupport_AUS

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Reply with quote  #7 
Great to hear that your girl seems to be doing so well. I have to say I had the same thoughts as TF when you mentioned that your D who I think is 13? is just maintaining. Given she is going through puberty even though she seems to be doing well, staying the same weight is probably going backwards. Good luck with tackling the standing and keep up the great work. 
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D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
mojo

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Reply with quote  #8 
Love good news. Gives hope to all. Glad to hear. Happy for you! 
martican

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Reply with quote  #9 
I just read your whole journey and it is an amazing progress. Great inspiration and great job!
However, I second TF and Foodsupport' s point of views - even healthy, non-AN teens are constantly growing at this age (I assume your D is 13-14 now?), so I would be worried about such small weight gain in a whole year. 1.5 lb could be attributed also to water retention, not pure weight. You mentioned you feel there is still work needed to be done so maybe you feel the same in your gut. Best of luck and keep us posted!
melstevUK

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Reply with quote  #10 
Hi Steve,

Great news and progress.  I am so glad when someone lands on this forum - because they have the best chance of getting their child to wellness.  You have done an amazingly good job with your d - and celebrate and enjoy it. 
You now know what you are doing and can push back throughout the teenage years whenever this ugly illness tries to show its face again!  As long as you are aware of the need for weight gain and growth throughout the teenage years and keep on going your d will be just fine.  So glad you have had a good medical team too.  

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Believe you can and you're halfway there.
Theodore Roosevelt.
mjkz

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Reply with quote  #11 
Awesome!!!! What a relief for you, your wife and daughter.  Well done all of you.
OneToughMomma

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Reply with quote  #12 
Congratulations, team!
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D in and out of EDNOS since age 8. dx RAN 2013. WR Aug '14. Graduated FBT June 2015 at 18 yrs old. [thumb]
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