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Hebrides

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Reply with quote  #76 
Thanks, Izzo - it does seem we are treading parallel paths at the moment... She is supposed to be on Sertraline (started about 6 weeks ago in the previous unit, after several months of total refusal of meds) - but has refused it over the past week or so. She has also been refusing Clorazepam, which the PICU put her on, so since yesterday they have been giving her Promethezine IM x2 a day (she was having it prn in previous unit). Her reason for refusal - meds make her gain weight.

You're right, mjkz. It's a fine line to tread and at the moment I feel there is precious little chance of my saying the right thing, or not saying the wrong thing.
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You would love to have her home and have her feel better but she has to do the work to get there and only she can do it. 
This is exactly what I keep saying to her, but her response is always "I can't do it, I have no control, do you think I'm not trying" and such like. There has always been an element of passivity in her illness - which may link to the BPD, and she seems to find the prospect of taking even a little bit of responsibility in the process completely out of the question.

I couldn't get hold of anyone senior enough on the ward today, so will have to wait until Monday. Older d will be home from uni tomorrow and will visit her sister with me on Sunday - I hope and pray that this weekend's visits can be better than the last week's.

Thank you all for your continued support - I dread to think what state I'd be in if not for this forum.

xx

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Mum to 17 year old daughter with AN,1 year IP from Feb 2015, discharged Feb 2016, WR but mentally nowhere near where she needs to be. Remained stable but rapid weight loss again leading to admission to specialist ED unit Sept 2016. Back round the circle...
mjkz

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Reply with quote  #77 
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There has always been an element of passivity in her illness - which may link to the BPD, and she seems to find the prospect of taking even a little bit of responsibility in the process completely out of the question


Who does have control then?  Would be interesting to ask her because she will never get out of the hospital until she starts taking some responsibility for her actions.  My daughter at first would say that and I would usually ask her who she thought made her hit her head on the wall.  Her answer was her ED and I'd simply point out that the ED is also a part of her and she can start making choices to control it.  It took awhile but after each incident, I'd sit down with her and point out where she could have made a different choice or at least asked for help from staff to help her not to get into such a precarious situation.  She hated every minute of it but pointing out to her where she could take control slowly seemed to seep into her consciousness and she started making better choices.
Izzo

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Reply with quote  #78 
Hebrides - I get similar responses from my D like "It's not as simple as you think"  etc etc. 

I do agree with what MJKZ is saying and I questioned the staff today about how they teach my D to take responsibility for her actions. They say that they are tackling this through a care plan which means my D sits with the staff and formulates a plan about how to help her when she is in distress. There has been some improvement however she is still turns to headbanging to self soothe.

At the same I do wonder if there is in an element of the way the AN brain is  wired making it less conducive to some of our Ds being unable to control these impulses.

BTW are you sure your D has BPD - I was told my D has BPD traits from the last Psyc but the current Psych refuses to diagnose her with that. Also can your D be forced to take her meds because they may help with the impulse to self-harm? 


mjkz

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Reply with quote  #79 
Izzo the more I hear about the unit your daughter is in, the more I love it.  They really are on the ball.  I had to do all of this kind of stuff on my own against staff wishes.
Izzo

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Reply with quote  #80 
Yes the unit is great - my daughter is not improving very fast - (in fact there are barely any improvements over the last two months) but they are the only unit in the UK that seem to tackle the behaviours along with the AN. It is a very small unit though with only a few beds so difficult to get places  but they probably are the best suited to a more 'challenging' presentation of an eating disorder

AUSSIEedfamily

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Reply with quote  #81 
Dear Izzo,

Your D's team sound like they have applied the same or similar process to what I am learning in the Certificate IV in Mental Health. The process they appear to be following appears in all of the Certificate IV units especially in the emotional & physical wellbeing unit. If they following the same process I am confident that they are working on the head banging. It might be that the head banging is tougher item & will need a bit more work to overcome.

In the Certificate IV course we are learning about recovery not being a straight line process with success measured in different ways for each situation/scenario and that some success are more readily acheived than others. Celebrate all success and let the small successes build capacity to reach the not so easy ones.


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