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K63

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Reply with quote  #76 
Hi Floating, thinking of you hope your d continues to put on weight and is doing a little better. I hope by now that the psychiatrist has sent the reverent letter to TAS and that she will be transferred soon. How are you doing.
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Daughter started restricting in February 2014, tried re feeding at home hospital admission 4 1/2 months weight restored started restricting post discharge, back on meal plan full supervision weight restored april 2016. Starting to hand back responsibility for meals it's scary. 
floating

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Reply with quote  #77 
Guys we got the funding!!!!! received news in post today

We are awaiting a bed with Janet Treasure Bethlem house, maudsley london......God if only she knew the struggles we have had.....
Please God let this work. After 5 months in the priory and leaving same weight as she went in last year my anxiety is still high

Feel this really is our last chance

We will have to lift the MHA to cross over countries but hope and pray D is sectioned in UK as we need this to work as will not without it

D has gained 3.4kg in last 4 weeks on NG and blus only, nil by real food but not worried about this at moment

Her state is very bad due to severe anxiety as does not want to go this fat..........so embarrassed!!! bless her

She is now 37.8kg from 34.4kg

I am veruy unwell too at present but hopefully as D heals I begin to heal too...

Huge hugs to all xxxx

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AUSSIEedfamily

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Reply with quote  #78 
Dear floating,

So glad to hear this news & hope that this team can achieve what's needed
 

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floating

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Reply with quote  #79 
Thank you Aussie

Me too...........whole family need a shining light at present xx


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Hebrides

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Reply with quote  #80 
Floating, this is such fantastic news to end my rather less than fantastic day on - I can't tell you how thrilled I am that all your tireless advocacy has finally paid off. You know from past experience there will be tough times ahead, but this really is a massive step forward for your d's recovery - do you have somewhere you can stay in London?

Sending warm hugs and a huge pat on the back!

xx

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Mum to 17 year old daughter with AN,1 year IP from Feb 2015, discharged Feb 2016, WR but mentally nowhere near where she needs to be. Remained stable but rapid weight loss again leading to admission to specialist ED unit Sept 2016. Back round the circle...
floating

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Reply with quote  #81 
Hi Hebrides

Thank you

Last time in scotland I stayed for the first 5 weeks D was IP,,,,,staff were rather shocked by this!!! 
Went home and flew back every wkd but after flying all the way D sometimes did not want to see me..........as happens

This time I am too unwell so do not plan to stay for more than 2 days but not sure where staying yet to be honest

Hope to meet a few of you whilst over there xx

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Sotired

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Reply with quote  #82 
I am happy to hear that everything is going ahead floating but really concerned about you.wrapping you in a warm hug and hoping that finally you feel peace enough to start caring for yourself.sending you strength across the sea,love so tired
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Torie

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Reply with quote  #83 
WOOHOO!!! Floating, you are one heck of a force to be reckoned with!! So very glad to hear this good news.

Now, please start planning how you will take care of yourself.

Hugs,

-Torie

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"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
MumTo2UK

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Reply with quote  #84 
OMG! Happy days! So pleased you've got the funding Floating! Your D is on her way!
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Mum of 17 year old daughter with AN seeking guidance
NELLY_UK

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Reply with quote  #85 
Crying with relief for you Floating!! I used to live in Croydon and my school backed onto Bethlem which is across the border into West Wickham. It is considerably cheaper than London. I am about 2 hrs away but there are guest houses near to Bethlem.happy to help you if I can. The train from here to east croydon is 1.5 hrs then its a bus ride to Bethlem. Welldone for getting in there. They wont let you down. Xxx
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NELLY D 18 bulimic since age 12, diagnosed in 2011. 20 months useless CAMHs,7 months great IP, home March 14..... more useless CAMHs.now an adult & no MH services are involved. I reached the end of my tether, tied a knot in it and am hanging on. Bulimia treatmentis in the dark ages in West Sussex.
hyacinth

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Reply with quote  #86 
Floating - hurrah! what a huge, huge relief that your d will finally get proper treatment. I will send you a message separately as we are 30 minutes by train from East Croydon and it would be no problem for you to stay, when the time comes. You are an amazing mother.
catbells

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Reply with quote  #87 
Fantastic news. Your fantastic, unstinting hard work is paying off. Now it's time for your oxygen mask xx
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Mum to 16y/o D living in England. RAN since Sept 2015. Refed at home but after getting within 3kg of WR D relapsed July 2016. hospital twice for 2 and then 5 weeks. Now IP since Sept 2016
Penny31

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Reply with quote  #88 
That's wonderful news! We're waiting for a bed too, possibly at the Bethlem. If my D ends up there too I'll let you know.
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14 year-old D diagnosed with AN in March 2016. Episodes of self-harming, anxiety, severe depression. Waiting for a CAMHS assessment to see if there's an additional diagnosis. 
Foodsupport_AUS

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Reply with quote  #89 
What fantastic news. It can't come soon enough that they move her, but great that she has gained over the last few weeks too.
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D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
BJUK

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Reply with quote  #90 
Fantastic news, this made my day (and my days are pretty wretched at the moment) Thank goodness some sense is finally prevailing and you have your funding.
deenl

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Reply with quote  #91 
Dear floating,

I can't imagine how relieved you must all be at the news. I hope and pray that when you look back in years to come you will see this as the turning point. I am praying/crossing fingers/lighting candles and inscense/humming mantras and anything else I can think of that the transfer goes well and that you get the chance to heal.

You are a trojan as are both your daughters.

Well done again,
D

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Mother of 13yo son restricting but no body image issues; inpatient 6 wks Sept/Oct 2015 but lost weight! So emotionally destroyed they agreed to let him home to us. Stable but no progress. Medical hosp to kick start recovery for Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

Swedish proverb: Love me when I least deserve it because that's when I need it most.

We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.

sk8r31

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Reply with quote  #92 
Adding my voice to the chorus to say how VERY happy I am to hear this news!

What a tremendous mum you are for fighting so hard for your d to get the treatment she so desperately needs.

Hope that now you can tend to yourself, and take the best possible care to build your strength and health up.  Sending much love & support to you & your family.

Hugs,
sk8r31

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It is good to not only hope to be successful, but to expect it and accept it--Maya Angelou
Bottle

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Reply with quote  #93 
Woooo hooooo, well done! What a slog but YOU DID IT! If you end up staying at any point I would be happy to come into London -I would bet that those of us dotted in and around London would all want to come in and see you!
Let's hope this is the beginning of the end of this awful illness for your amazing D -

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Bottle
D2 RAN as part of Pervasive Refusal Syndrome with a history of not walking for a year and being non verbal for a short while too. Considered to be Aspergers by everyone that has worked with her and by us but still awaiting a diagnosis that'll help us access support services she needs.
D1 recovered RAN and D3 doing pretty well considering the mayhem around here!
K63

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Reply with quote  #94 
Hi Floating, was so happy to log in and see the great news after all your hard work this is great news. I can appreciate how you must be so mentally and physically exhausted from it. I am feeling floored from the constant stress it brings . Hope you will get a chance to care for yourself .will be thinking of ye.
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Daughter started restricting in February 2014, tried re feeding at home hospital admission 4 1/2 months weight restored started restricting post discharge, back on meal plan full supervision weight restored april 2016. Starting to hand back responsibility for meals it's scary. 
sunnyday

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Reply with quote  #95 
Hi Floating....logging in to check for updates and found your wonderful news.  Congratulations to YOU for all your efforts and your awesome perseverance.  Amazing!  I am sure you are utterly exhausted and most likely are thinking "be careful what you ask for you just might get it" because now you have to face packing, travels etc.  You can do it!  So sorry to hear you are not feeling so great yourself.  This illness takes a toll in all directions with everybody.  Hope you feel better soon.  All the best to you and your d as you navigate the next step in getting your d the right treatment she deserves.

Always thinking of you....and feeling very proud of you for "keeping on keeping on".  Hoping for better days....keep us posted when you can.

You are the best Mom ever!!!


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Daughter diagnosed 2010 (9th grade) with AN/Binge/Purge.  D. had brewing ED thoughts as early as 4th grade. Constant battle with ED from 2010-present.  Co-morbid anxiety & depression & suicidal thoughts & self-harm.  Most recently in intense DBT/ED program outpatient . Weight restored but not happy about it.
floating

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Reply with quote  #96 
The Psychiatrist took annual leave for 2 weeks and is not back till 18th May .......D is not aware of this and thought the day the funding came through she would be transferred

Presently in a very poor state as each day waiting is an eternity to her.......ED very loud last few days and will not allow her to have a coffee even though she only has a tiny drop of milk...maybe a teaspoon, this has never happened before

She feels huge and very scared to go to UK as perceives she will be fattest girl in treatment and is demanding to come home

Wish we could just get on flight now as this is making me so ill............my anxiety and lack of sleep is dreadful

I know I spoke on TV and radio stations but I am very shy..........love has no boundaries I guess

But would love to meet parents who GET IT and will feel lost in London so hopefully get to meet a few of you

Unfortunately we have to fly into Heathrow instead of Gatwick due to passport issues and not being able to renew passport as cannot get a pic with NG tube in
With everything going on did not realise passport out of date, grrr!!

 Aerlingus will let us fly with just photo ID but Ryanair insist on passport
British embassy will assist but they would need 72 hours notice and last year we did not know about transfer date till 12 hours before flight

All stress but we will get there

Thanks for all the lovely messages of support means so much

xx

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Penny31

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Reply with quote  #97 
Sorry to hear you're still going through such a stressful time. You are such an amazing person to be getting through all this. I really hope things improve soon, and that your D gets the care she needs as soon as possible. I live in central London and would be very happy to meet up with you. 
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14 year-old D diagnosed with AN in March 2016. Episodes of self-harming, anxiety, severe depression. Waiting for a CAMHS assessment to see if there's an additional diagnosis. 
mjkz

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Reply with quote  #98 
All I can say thank God someone finally started using the brain over there!!!![wink]
Jasmine1

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Reply with quote  #99 
Great news about the funding. I really hope things will finally turn around for you all. You've been through a nightmare experience with the healthcare system. Let's hope now that your daughter will now get the best help. I can't imagine the stress you've been under.
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Daughter was age 11 when she started restricting Aug 2014, admitted to paed ward Dec 2014 for low BP, pulse rate and spent 3 weeks there. As they were about to NG tube her, she decided to eat again. After approx. 1.5 years on a meal plan and lots of toil, sweat and tears she is weight restored and has just been discharged from NHS care. It's been a very slow traumatic process but each day we are making progress.
NELLY_UK

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Reply with quote  #100 
So when is she actually going? Do you have to wait for the end of his leave? Now its agreed how long is the agreement in place for?
I am sure you have it covered.
I pray it moves fast this process. Too dangerous to delay. I am gutted you still have to fight until she is actually on the plane.
Grrrrrrr. X

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NELLY D 18 bulimic since age 12, diagnosed in 2011. 20 months useless CAMHs,7 months great IP, home March 14..... more useless CAMHs.now an adult & no MH services are involved. I reached the end of my tether, tied a knot in it and am hanging on. Bulimia treatmentis in the dark ages in West Sussex.
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