Registered: 1502172359 Posts: 3
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Hello! I'll Sarah and new to the board but not new to FBT. My own son had an ED but is now recovered (and thriving!) thanks to FBT and the help of inpatient. I joined the board not because of my son but because I've seeking advice on how to help a family friend. This family has a 16 year old daughter who's been actively in her eating disorder for the last couple years. The daughter spent a bit of time in an old school treatment center which of course was not helpful. The family recently switched dietitians and were struggling with how to help their daughter (wanting to "fix") her. The dietitian suggested a modified FBT (I.e. Magic plate and life stops until you eat and possibly an FBT treatment center). After this was suggested my dear friend came to me because she knew I did something similar with my son. My friend simply can not wrap her mind around FBT and is very much old school minded. She thinks daughter needs to "take personal responsibility" and wonders how this will prepare her d for the real world. Both my friend and her husband work full time and are not willing/can't take time off to really implement the food piece. They also have other children at home and don't think that it would work with the kids around. Yet they wonder why their daughter has not done well! I've done my best to educate my friend on how ED is a biological disease and the overall fbt concept. I've given her "Help Your Teenager Beat an Eating Disorder" by Lock and Le Grange. Hopefully this will help shine some light on how beneficial fbt can be. In the meantime, I would love suggestions on how to explain fbt and help my friend understand its benefits. Obviously I can not change her mind and don't accept responsibility but i care about my friend and her D and truly believe that fbt can be the way to go.
Registered: 1369949641 Posts: 1,792
Reply with quote #2
beated, Welcome here & glad that your son has recovered. You might like to try giving the parents the F.E.A.S.T booklets https://feast-ed.site-ym.com/?nutritionguide https://feast-ed.site-ym.com/?page=DiagnosisGuide https://feast-ed.site-ym.com/?page=neuroguide https://feast-ed.site-ym.com/?page=TreatmentGuide Throwing Star Fish Across the Sea is a good book by Laura Clollins & Charlotte Bevan (Dec) both mums from this very forum https://www.amazon.com/Throwing-Starfish-Across-Sea-pocket-sized/dp/1494307146 __________________ ED Dad
Registered: 1496061527 Posts: 771
Reply with quote #3
that would be hard to convince them if they don´t understand that their d cannot make good and healthy choices at the moment. Maybe you could try the hard way: Ask them wether they would let her d decide to have chemo therapy if she had breast cancer or wether they would decide that. But if they are not willing to take time for fbt, it wouldn´t work. You have to be convinced that is the right way, I think, or so hopeless that you don´t see another chance to save her life. Maybe Harriet Browns book (Brave girl eating) would change their mind? Tina72
Registered: 1284535839 Posts: 3,402
Reply with quote #4
Welcome to the forum beated. Great that your son is doing well, but sorry to hear about your friends and their daughter. Giving your friends information and letting them inform themselves is a great idea.
I think the number one thing to explain about FBT is that food is the first step to recovery. If this is not happening then recovery will never happen whether their D takes responsibility or not. Other books which explain this concept is Give Food a Chance and Decoding anorexia. Perhaps the step that they need to be aware of is that refeeding will not fix their child but the brain repair will help her mind get to a place where she can start to take care of herself. __________________ D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
Registered: 1496061527 Posts: 771
Reply with quote #5
She thinks daughter needs to "take personal responsibility" and wonders how this will prepare her d for the real world." Maybe you could tell your friend that anorexia has nothing to do with the "real world" and that her d could not live on her own and join the "real world" with a brain disease like anorexia. Its AN who fixes her d and she is not able to be selfcaring/taking responsibility with that disease. Your friend may think that she don´t "want" to eat and she must learn to see that she is "not able to" eat. That is a big difference. It is like flight fear: these person wants to be able to fly with a plane, but the fear is so big that she is not able to. Tina72
Registered: 1452437794 Posts: 2,051
Reply with quote #6
Can you email her this link http://www.mirror-mirror.org/family-based-treatment-for-anorexia.htm __________________ Son,DX with AN, (purging type) in 2015 ,had 4 months immediate inpatient,then FBT at home since. He is now in strong recovery, and Living life to the full, like a "normal" teen. This is with thanks to ATDT. Hoping to get him into full recovery and remission one day at a time. Getting him to a much higher weight, and with a much higher calorie plan than his clinicians gave him as a target, was instrumental to getting him to the strong recovery that he is in now. Food is the medicine.
Registered: 1502172359 Posts: 3
Reply with quote #7
Thank you all so much for the suggestions. I can't believe I forgot about the feast articles! I will be sending my friend the articles and book names. My hope is that once she is more educated about fbt and the illness that her opinion on it will change. I believe there is hope for the girl she and her family just need the right tools.
Registered: 1304383538 Posts: 1,325
Reply with quote #8
You've gotten some good suggestions, and the FEAST Family Guides and Throwing Starfish to the Sea are all easily and quickly read.
Might I also suggest the AED (Academy of Eating Disorders) Guide to Risk Assessment and Medical Management of EDs? I think it is a good companion to the FEAST Family Guides, and worthwhile to have on hand to share with medical providers. Whether your friends send their d to an inpatient or residential program, they will still need to help her once she returns home. Knowledge is power and the more evidence-based information that they take in, the better. Warmly, sk8r31 __________________ It is good to not only hope to be successful, but to expect it and accept it--Maya Angelou
Registered: 1438737617 Posts: 1,502
Reply with quote #9
She thinks daughter needs to "take personal responsibility" and wonders how this will prepare her d for the real world.
Honestly that should be the last thing on their mind. If their daughter doesn't get good help, she isn't going to live to see a future and will probably live at home if she does survive long-term. If they hope to prepare their daughter for the real world, getting her into recovery would be the first step. I sometimes think people don't really understand that eating disorders can kill. Worrying about preparing her for the real world right now is like worrying the morphine you are giving to a terminally ill patient is going to make him/her an addict.