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coffeemom

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Reply with quote  #1 
My 12 y.o S seems to be falling down the same road as my D was at 11.  DX ARFID 2013 We ended up at Kartini Clinic which was wonderful and healing, but insurance does not cover there.  Anyone have experience with Seattle Childrens or somewhere in Seattle.  thanks
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sk8r31

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Reply with quote  #2 
I am north of Seattle, and have some knowledge of providers in the area.

Kartini is great; have you contacted the Evidence-Based Treatment Center of Seattle?  They have well-respected providers.

When we were searching for appropriate evidence-based care, our family traveled to the UCSD 5 Day Family Intensive program.  It was a life-saver.  Definitely worth contacting them to find out if it might be suitable for your family.  Our insurance covered the total cost of treatment (though not travel/accommodation).

I know there was another forum member whose d was diagnosed with ARFID while at UCSD not too long ago.

Sending warm support,
sk8r31

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It is good to not only hope to be successful, but to expect it and accept it--Maya Angelou
YogurtParfait_US

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Reply with quote  #3 
How's it going, coffeemom?

We got high quality help at EBTCS. Did not need inpatient, but were able to re-feed at home. My insurance covers 60% for out-of-network, so we got that coverage, though EBTCS does not bill insurance.

SCH does inpatient, but ED kids are mixed in with the general kids psych ward. I observed ED kids there when I was there visiting another patient, and didn't see any quality meal support being provided.

There is ERC in Bellevue, but I know nothing about their approach. They used to be a center The Moore Center that was fairly traditional and not evidence-based. ERC took it over a couple of years ago, so I'm not sure how much staff-retraining or replacement has occurred. I don't know enough to make a recommendation.

Sending warm support,
YP

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"Hope is a wonderful thing ... but hope by itself is not enough. Hope is the reason to take action, to make a plan and then to change the plan when it isn’t working - over and over and over again if necessary." Hannah Joseph (Let's Feast Friday Reflection, "Just Keep Going," Friday, March 3rd, 2015)
ally2016

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Reply with quote  #4 
My D did CFD in Edmonds for RAN and an inpatient stay at Seattle Children's for medical stability. Both were good but it's still a long journey.
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