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Posts: 6
Reply with quote  #1 
We have arrived in SD for the highly recommended PHP program. We are scared and overwhelmed. Our daughter has been in the hospital for over a month in OKC. We have had care transferred here. Over the 2 day drive, it is evident that AN is still very much in charge... that is so scary. The restricting to under 1000 cals a day began the night we came home from the hospital. We try and get her to eat more, but she simply refuses no matter what. We are really hoping this will be a turning point. If anyone has any last minute advice or encouragement to offer, we would love to hear it. Our journey in CA begins in the morning. It is so discouraging to see that although she is medically stable for now, her mental progress is so slow. It seems that we would be back where we started in a month. I realize she would have still been in the hospital, but I’m still terrified.

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Posts: 3,548
Reply with quote  #2 
I understand your fear, but congrats on getting her to San Diego. The great part about this program is that they are going to work with you to help her eat outside of hospital. They will help you be in charge and long term help her to get back to health. This is a marathon not a sprint, yes I know you were over this the day it was diagnosed, and it really does take a long time for them to recover. Mental health takes a lot longer than physical health, there brain has to switch off the anxiety. 

I have found the best thing is to look back at where we have been with this illness, unfortunately 8 years here. My D is not fully recovered but she is so far away from the child that was so ill in 2010 and 2011. Each year since has brought improvements and positives. My D is at university. She is studying for her dream career. She has friends, socialises and overall is living a normal life. It will happen to you so slowly that you will not notice that she is getting better until all of a sudden you see that this month is nothing like a few months ago. You are with a world class team, they will work hard for your D to recover. 

D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.

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Posts: 1,361
Reply with quote  #3 
Wishing you all the best this week.  It will be exhausting & be emotionally draining, but you will learn so much.  The UCSD 1 week program was the turning point for our d and our family.

You are in good hands, with some of the best clinicians and researchers in the field.

Hang in there....sending warm support.


It is good to not only hope to be successful, but to expect it and accept it--Maya Angelou

Posts: 1,047
Reply with quote  #4 
Yes! Now you are fighting it and you are in best hands!
You will learn so much this week and I hope that will turn everything around for you.
I heard so much positive things, this MUST be good.
Keep us updated how you are doing!
I send you a big hug across the ocean!

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Posts: 4,895
Reply with quote  #5 
How is it going, WingingIt?  I feel confident that you are in the right place - you will learn so much this week, and if further treatment will be needed, I'm sure they'll give you good advice.

Please keep us posted.  Thinking of you. xx


"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
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