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edhater

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Reply with quote  #1 
Will I know when my D is experiencing Extinction Burst? Is it very different for each child? Does it last a day, a week, a month? Every time she has an explosive episode, I wonder, is this it?
EC_Mom

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Reply with quote  #2 
EDhater, I was you. Same exact question. "Is this an EB or is it just more of the same misery and awfulness?, and how would i know?"  I still don't know if we even had them or not. Some people here swear by it, that there was pronounced "worse" that signified a new stage.

If it helps you to think of an extinction burst, then it is one. There might be many, many episodes over a long time and then it's a loooong extinction burst, more like an extinction FUSE. 

If it means you are more dejected when the next day is equally bad, or the next week, or even worse, then just call it the ugly trenches of refeeding. 

Just know that you are not alone. I am cheering for you, and others here are too. It's so awful, and so scary, and exhausting. Your child will come back though, and there will be a new and beautiful normal.


Foodsupport_AUS

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Reply with quote  #3 
I think it is really hard to work out at the time, more in retrospect. Recovery never goes in a straight line, there will be good days and bad days. There will be bad days one after the other, is that extinction burst. In some of the older sections you will see threads about the last 5lbs or the last 10lbs. This is when extinction burst is most likely to happen, just as you are getting close. I think looking for it to tell you are getting close is probably a mistake, you will end up second guessing yourself all the time. If you know you are close to weight restoration, assume that it is extinction burst. After the fact when things have been calm and they are weight restored it is easy to look back and have that moment where you realise that was definitely it. 
http://atdthalloffame.feast-ed.org/home/advice-for-phase-1-re-feeding/the-last-ten-pounds

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D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
edhater

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Reply with quote  #4 
Thanks for your input. I have another questiion. That being said, I don't know if there's an answer. Is the return of D's period predictable? That is, does it usually come along with WR or several months later? Before WR? Or, is the return of her period very individualized? My D was extremely regular before ED and I'm wondering when or if I'm able to predict it's return during or after refeeding. Her last period was June, 2017.
EC_Mom

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Reply with quote  #5 
It's not predictable. Please note that it is also NOT the criterion for knowing that your d is at the right weight for her. Some parents on here had ds with periods and yet extremely in danger. There have been doctors and dietitians who have wrongly told parents that this means the kid is weight-restored. As has been said, weight-restored also would include improved state of mind, over a long time.

Some ds (mine too) get very upset with the return of the periods, they feel like they have failed at anorexia. No use arguing, just comfort and distract.
Foodsupport_AUS

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Reply with quote  #6 
It is definitely not predictable and as EC mom has said, periods sometimes continue even when people are markedly underweight. On average it returns close to the weight it was lost and often about 90+% of expected body weight but that is all so rough you often have to weight and see. 

Mostly it returns during re-feeding, again very general. 

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D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
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