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NELLY_UK

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Reply with quote  #726 
I havent been here in months because its been same old starving bingeing purging refusing to accept help, suicide and self harm returned and I thought I'd start to have panic attacks in the night.
Anyway d has started to see a therapist who specialises in eating disorders, has first hand experience of recovering from bulimia.
She is local and private so its costing but oh so worth it. D likes her!!!!
I stay out of it competely, apart from paying!
We tried adult services who promised alot and delivered nothing. D was too heavy to get ED therapy. The nurse weighedher discussed BMI. D left and didn't return. So much for the promise of informed CBT BN.
Anyway, third session was today, the aim is weekly at the moment its fortnightly due to availability. I am sticking with this as its a good fit.

D has also booked a short holiday with her bf so hubby and i seized the day and booked a holiday ourselves. Wowzer!

I am only coming back here if its good news having been round the houses several times over the last 6 years of hell. The hell continues but there is a new chink of light.
Keep everything crossed for us, pray, dance with wolves, light candles, etc etc all postive vibes are welcome!
Thats all. I hope it cheers someone up out there. Old timers you know who you are!!
Xxx

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NELLY D 18 bulimic since age 12, diagnosed in 2011. 20 months useless CAMHs,7 months great IP, home March 14..... more useless CAMHs.now an adult & no MH services are involved. I reached the end of my tether, tied a knot in it and am hanging on. Bulimia treatmentis in the dark ages in West Sussex.
catbells

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Reply with quote  #727 
So pleased to read this. Fingers, toes and everything crossed for you all. Enjoy that holiday. You deserve it!
Xx

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Mum to 17y/o D living in England. RAN since Sept 2015. Refed at home but after getting within 3kg of WR D relapsed July 2016. hospital twice for 2 and then 5 weeks. Now IP since Sept 2016.
Torie

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Reply with quote  #728 
Nelly, So glad to read these positives!  It's so great that you will be able to take the vacation you so richly deserve ... well, you deserve a vacation that lasts several decades and you won't get that, but still ...

Yay yay yay! xx

-Torie

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"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
BJUK

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Reply with quote  #729 
Ah Nelly that's great you're getting a break. Fingers crossed for you all. I'm still lurking here...sigh! xx
MumTo2UK

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Reply with quote  #730 
So good to read your update! Got everything crossed for you Nelly!!
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Mum of 17 year old daughter with AN seeking guidance
Sotired

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Reply with quote  #731 
We take the good times while we can eh nelly!good on you for finding an effective therapist for your d,and for looking after your own needs-well overdue [smile]
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Sotired42
AUSSIEedfamily

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Reply with quote  #732 
Dear Nelly,

Making lots of prayers for you.

I often think of you & hoping that those who could help would step up & help.

The tyrrany of distance prevented me from giving you more hands on help.

I will be doing all I can to raise this issue with Janet Treasure when she visits Australia later this year & when I visit Prague in June for the AED conference as the recipient of the AED parent/carer scholarship.

Early indentification & early intervention were certainly not part of your experience!!

Warm & Kind thoughts to you


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NELLY_UK

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Reply with quote  #733 
Thank you Ed dad, the trouble is the whole NHS is on its knees and mental health services have always been bottom in the priorities. Charities do more to raise awareness and offer support.
There is starting to be a recognition that mental health is affecting productivity due to people taking time off work.
The education system is another place where so much more could be done. There is a shift towards well being but we still have league tables for exam results rather than measuring other aspects of nurturing resiliant capable kids.
My husband wprks with an ex Mh nurse and she shadowed MH services for some months. She said herself there is a lack of training (other than in some hospitals) our CAMHs she said had no clue when it came to eating disorders. No training at all, no idea how to help families. No surprise there. Biut i have experienced first hand the danger of being locked into ill informed professionals. Believing them when they said it was our fault. Stepping back when we needed to step up. Allowing this monster to take over our young child causing untold damage.as you know.
The whole independent report identified mistake after mistake through lack of awareness from professionals.
Thankfully, miracuously D is alive, but i am certain her life will be tortured and short.

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NELLY D 18 bulimic since age 12, diagnosed in 2011. 20 months useless CAMHs,7 months great IP, home March 14..... more useless CAMHs.now an adult & no MH services are involved. I reached the end of my tether, tied a knot in it and am hanging on. Bulimia treatmentis in the dark ages in West Sussex.
peregrine_USA

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Reply with quote  #734 
Hi, Nelly - caught up with how things are going. I hope you have a wonderful holiday and so glad to read that you have identified someone your D is willing to work with. such an important step May she continue and find that she really can get imto recovery. Sending you hugs and a big thank you for taking time out to give me support.

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Peregrine_USA
braveMom

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Reply with quote  #735 
Hi Nelly, very happy for you. You and your girl so deserve this. Lots of hugs and good luck..


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melstevUK

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Reply with quote  #736 
Glad you are getting a break Nelly and glad d has found a therapist she can engage with.  Recovery takes far longer for many, particularly if you cannot get really effective help on the ground at the beginning and even then often maturity has to be factored in.  Just keep telling d that it will get easier as her brain changes from adolescent to mature adult and expressing optimism and an expectation that she will recover.  
You can't do more than that.  


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Believe you can and you're halfway there.
Theodore Roosevelt.
AUSSIEedfamily

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Reply with quote  #737 
Dear Nelly,

I really hate the situation of the services that are provided absolutely fail to to do what they should escpially when the most expert people & processes are at the finger tips of service providers but that they are just any or all of these; not able to reach out for them, are too lazy to reach for them, too overwhelmed, are poorly trained & their management team are poorly trained plus a whole lot of other stuff.

I hope that with our D now in a place beyond her ed experience, me in a retirement life, my Certificate IV in Mental Health course & the organisation I sit on the board of I can do something to change the madness of very poor service providers.

Best Wishes

Don Irvine

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