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deetz

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Reply with quote  #1 
So my daughter has admitted that she's losing weight so she doesn't have to have periods, because they're "too horrible" to endure. (This is a part of my thinking she may be on the autism spectrum - she's been horrified by this for a long time and obsessing about it.) She got her first one this summer, and it's been a downhill slide ever since. We've talked to her doctor about medical cessation once she's well and we are fine with it if it will help, but she doesn't want to "endure" periods until she's well to get to that point. It's not a pain/cramp thing, because I've asked about that, it's just an intolerable, uncontrollable change that she can't handle and says ruins her life.

Has anyone else seen anything like this? We're at an impasse right now, because she knows the score, but the idea of a period is so unacceptable to her that that's all she sees. BTW, she's 14.
OneToughMomma

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Reply with quote  #2 
Dear deetz,

I know you've had some concerns about ASD or similar comorbids with your d.  And that is certainly understandable considering the behaviours you report. 

She's saying she doesn't want her period, and that could be either an ED thing or an ASD thing.  In the end, though, the most important thing is still weight gain.  D will not recover from ED until she gets to a good weight, ASD or no.

You've been at this for a long time, now.  Almost a year, right?

And I'm not throwing stones of any kind--it took ages to get our d to WR.  I guess what I'm asking is do you see progress? For that year it took us to get our d close to WR, we saw mostly an upward trend.  Kind of like the stock market with dips and bumps, but mostly going up.  Are you happy with the support d has been given?  Are you happy with her weight gain?

If you've got a good FBT therapist, he or she will help you push past this anxiety and keep d gaining.  What do they say about her using periods as an excuse to not gain weight?

Sending a big hug because it's really hard, we know.

xoOTM


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D in and out of EDNOS since age 8. dx RAN 2013. WR Aug '14. Graduated FBT June 2015 at 18 yrs old. [thumb]
mjkz

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Reply with quote  #3 
My daughter when she falls into thinking about being eating disordered again often uses having her period as a reason.  She absolutely hates it and would get a hysterectomy if she could find someone foolish enough to do it.  For her, it is the worst part about being recovered.
Foodsupport_AUS

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Reply with quote  #4 
Some women who have normal pain free periods have an obsessive dislike of them. I would liken this more to a dislike of other bodily functions or even of body parts which some people also have. Unfortunately short of a hysterectomy there is no sure way of stopping bleeding completely, medications are only effective in around 70% of cases and there are risks to using them. Hopefully as she recovers her weight and physical health those thoughts will lessen.
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D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
mjkz

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Reply with quote  #5 
My daughter has trauma issues so you may be right.  She also doesn't have pain free periods by any means.  She does admit that they are better at a higher weight but her hatred of periods started even before they started and if anything has gotten worse even being at a good weight.  At this point, it is just something she has to put up with and with the help of her therapist who is amazing, she actually does now.  Her psychiatrist has been very against her trying anything to stop them as both her and my mood disorders are very hormonally linked.  My worst depressive episode was after trying the pill.
Torie

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Reply with quote  #6 
Quote:
Originally Posted by mjkz
My worst depressive episode was after trying the pill.


Wow.  Never occurred to me that that might explain a lot.  My mental health took a drastic turn for the better when I was pregnant with my first child - I always thought it somehow reset my chemistry (permanently).  But maybe the problem wasn't my body chemistry but rather my reaction to being on the pill (for more than a decade).  Huh.  xx

-Torie

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"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
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